PATIENT ADVOCACY & ORPHAN DRUG WORKSHOP
July 19, 2019
8:30 am - 3:00 pm
Wyndham Boston Beacon Hill
PATIENT ADVOCACY & ORPHAN DRUG WORKSHOP Friday, July 19, 2019 from 8:30am to 3:00pm, Boston, Massachusetts. The National Organization for Rare Disorders invites all advocates to attend and participate in the patient advocacy and orphan drug workshop.
This will be an opportunity to learn about rare disease patient advocacy and connect with NORD about current legislative actions. In addition, this workshop will feature an opportunity to speak directly with members of Congress from Massachusetts about the Orphan Drug Act. This event is hosted at no cost to participants. Light breakfast and lunch will be provided.