Donate Now

Join RAN

CONNECTICUT PATIENT ADVOCACY & ORPHAN DRUG WORKSHOP

Loading Map....

Date/Time
May 03, 2019
8:30 am - 3:00 pm

Location
The Goodwin Hotel

Categories


PATIENT ADVOCACY & ORPHAN DRUG WORKSHOP Friday, May 3, 2019 from 8:30am to 3:00pm, Hartford, Connecticut. The National Organization for Rare Disorders invites all advocates to attend and participate in the patient advocacy and orphan drug workshop.

This will be an opportunity to learn about rare disease patient advocacy and connect with NORD about current legislative actions. In addition, this workshop will feature an opportunity to speak directly with members of Congress from Connecticut about the Orphan Drug Act. This event is hosted at no cost to participants. Light breakfast and lunch will be provided.Online Registration has closed. Please contact Kristen Angell at Kangell@rarediseases.org to register or call 203.304.7251

NORD Links

NORD Logo

Rare Disease Day Logo

Running4Rare Logo