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California Rare Action Network Patient Advocacy & Orphan Drug Workshop

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March 09, 2019
8:30 am - 3:00 pm

Hyatt Regency Sacramento


PATIENT ADVOCACY & ORPHAN DRUG WORKSHOP March 9, 2019 from 8:30am to 3:00pm, Hyatt Regency Sacramento, Sacramento, California. The National Organization for Rare Disorders invites all advocates to attend and participate in the patient advocacy and orphan drug workshop. This will be an opportunity to learn about rare disease patient advocacy and connect with NORD about current legislative actions. In addition, this workshop will feature an opportunity to speak directly with members of Congress from California about the Orphan Drug Act. This event is hosted at no cost to participants. Light breakfast and lunch will be provided.

Online Registration has now closed. To register for this event please contact Tim Boyd at

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