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Pennsylvania Rare Action Network Patient Advocacy & Orphan Drug Workshop

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Date/Time
February 01, 2019
8:30 am - 3:00 pm

Location
Renaissance Allentown Hotel

Categories
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The National Organization for Rare Disorders invites all advocates to attend and participate in the Pennsylvania Rare Action Network Patient Advocacy & Orphan Drug Workshop Friday, February 1, 2019 from 8:30am to 3:00pm at the Renaissance Allentown Hotel, Allentown, Pennsylvania. The National Organization for Rare Disorders invites all advocates to attend and participate in the patient advocacy and orphan drug workshop.  This will be an opportunity to learn about rare disease patient advocacy and connect with NORD about current legislative actions. In addition, this workshop will feature an opportunity to speak directly with members of Congress from Pennsylvania about the Orphan Drug Act. This event is hosted at no cost to participants. Light breakfast and lunch will be provided.

REGISTER HERE

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