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Massachusetts Rare Action Network Advocacy Workshop

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January 23, 2019 - January 24, 2019
8:30 am - 3:00 pm

Wyndham Boston Beacon Hill

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The National Organization for Rare Disorders invites all advocates to attend and participate in the Rare Action Network Advocacy Workshop being held on Wednesday, January 23, 2019 in Boston, MA from 8:30am-3:00pm.  This is a free meeting that will give attendees the opportunity to connect, learn, and share with other patient organization leaders and advocates.  This event is hosted at no cost to participants.  Breakfast and lunch will be provided. There will also be an opportunity for select individuals to accompany a group of advocates to the state capitol for legislative visits on Thursday, January 24, 2019.  If you are interested in participating in these meetings, you may select that option during the registration process.  Please note not all that sign up for the legislative meetings on January 24 will be able to attend.


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