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May 2020

Rare Action Network (RAN) COVID-19 Virtual Discussion Group – Maine

May 27 @ 12:30 pm - 1:30 pm

All are invited to participate in state-based discussion groups to express concerns, ask questions, and hear updates from NORD's Policy team. Register\

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Rare Action Network (RAN) COVID-19 Virtual Discussion Group – Arizona

May 27 @ 6:00 pm - 7:00 pm

All are invited to participate in state-based discussion groups to express concerns, ask questions, and hear updates from NORD's Policy team. Register

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Rare Action Network (RAN) COVID-19 Virtual Discussion Group – New Mexico

May 27 @ 7:00 pm - 8:00 pm

All are invited to participate in state-based discussion groups to express concerns, ask questions, and hear updates from NORD's Policy team. Registe

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Rare Action Network (RAN) COVID-19 Virtual Discussion Group – Montana

May 28 @ 12:00 pm - 1:00 pm

All are invited to participate in state-based discussion groups to express concerns, ask questions, and hear updates from NORD's Policy team. Register

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Rare Action Network (RAN) COVID-19 Virtual Discussion Group – South Dakota

May 28 @ 1:00 pm - 2:00 pm

All are invited to participate in state-based discussion groups to express concerns, ask questions, and hear updates from NORD's Policy team. Register

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Rare Action Network (RAN) COVID-19 Virtual Discussion Group – North Dakota

May 28 @ 1:00 pm - 2:00 pm

All are invited to participate in state-based discussion groups to express concerns, ask questions, and hear updates from NORD's Policy team. Register

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Rare Action Network (RAN) COVID-19 Virtual Discussion Group – Washington

May 28 @ 1:00 pm - 2:00 pm

All are invited to participate in state-based discussion groups to express concerns, ask questions, and hear updates from NORD's Policy team. Register

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Rare Action Network (RAN) COVID-19 Virtual Discussion Group – Oregon

May 28 @ 1:00 pm - 2:00 pm

All are invited to participate in state-based discussion groups to express concerns, ask questions, and hear updates from NORD's Policy team. Register

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Rare Action Network (RAN) COVID-19 Virtual Discussion Group – Oklahoma

May 29 @ 2:00 pm - 3:00 pm

All are invited to participate in state-based discussion groups to express concerns, ask questions, and hear updates from NORD's Policy team. Register

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July 2020

Soft Bones 2020 Virtual Patient Meeting

July 11 @ 9:00 am - 1:30 pm
Free

The Soft Bones 2020 Virtual Patient Meeting provides an opportunity to educate, empower and connect individuals and families living with hypophosphatasia (HPP). This event features patient education sessions led by renowned HPP experts on a variety of topics.

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