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December 2019

Rare Disease Symposium

December 12, 2019
Prince Conference Center, 1800 E Beltline Ave SE
Grand Rapids, MI United States
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Almost 1 in 10 people in the United States have a rare disease. Come connect with others who are interested in or have been impacted by rare diseases to hear about current research efforts in rare diseases and to hear stories from local families about living with rare diseases. The purpose of the symposium is to unite patients, caregivers and families, researchers, advocates, and students around the common goal of understanding what it means to be rare and how to…

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Rare Disease Forum

December 18, 2019 @ 6:00 pm - 8:00 pm
Hospital for Special Care, 2150 Corbin Avenue
New Britain, CT United States
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RARE DISEASE FORUM at Hospital for Special Care, New Britain, CT Wednesday, December 18, 2019 from 6:00p.m. - 8:00p.m. Hospital for Special Care, 2150 Corbin Avenue, New Britain, CT 06503 If you, a family member, or a friend has a rare disease, please join us for an open discussion and a chance to meet other families dealing with a rare disease. Although each rare disease is different, the challenges many Connecticut  families face caring for a loved one with a…

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