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February 2020

Arkansas Rare Disease Day 2020

February 29 @ 1:00 pm - 4:00 pm
Arkansas College of Osteopathic Medicine, 7000 Chad Colley Blvd
Fort Smith, AR 72916 United States
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Arkansas Rare Action Network Rare Disease Day Saturday, February 29, 2020 Arkansas College of Osteopathic Medicine,  7000 Chad Colley Blvd, Fort Smith, AR 72916 Please join patients, families, caregivers, medical professionals and industry representatives at this important event to learn about the challenges rare disease patients face and learn how you can make a difference in the lives of rare disease patients and their families here in our great state of Arkansas. CLICK HERE TO REGISTER  

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Rare Disease Day NYC

February 29 @ 3:00 pm - 7:00 pm

Rocket Pharmaceutical’s Rare Disease Day event aims to provide all who attend an opportunity to learn more about rare disease and the need for new treatment options. The event will highlight patient artists who raise awareness of their disease through their artwork. At the event, patient panelists will share their personal experiences with rare disease, and attendees will be given an opportunity to mingle with patients, caregivers, patient advocates, researchers and physicians. Rocket will also have educational materials available to…

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Rock The Causebah Concert Fundraiser in Austin, Texas

February 29 @ 5:30 pm - 11:00 pm
The North Door, 501 Brushy Street
Austin, TX 78702 United States
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$10

ROCK THE CAUSEBAH Fundraiser Concert for Rare Diseases February 29, 2020 from 5:30pm-11:00pm The North Door, 501 Brushy Street, Austin, Texas 78702 Live music, food, and an auction of amazing prizes from 5:30pm - 11pm. All ages are welcome and $10 at the door!  Proceeds to benefit the National Organization for Rare Disorders and the Galactosemia Foundation For more information visit: https://www.facebook.com/rockthecausebah  or contact Logan Greenday at [email protected]

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Be Fierce Glow Gala

February 29 @ 7:00 pm - 10:00 pm
The DoSeum (San Antonio Children’s Museum), 2800 Broadway Street
San Antonio, 78209 United States
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See website for details

Let's Glow! Join Be Fierce Foundation for a one-of-a-kind blacklight family-friendly party to help bring awareness to kids and families battling rare diseases. Feb. 29, 2020 is Rare Disease Day, so we're going big for FIERCE kids! Wear white...neon...or anything that glows as we rock The DoSeum. Snacks, sweets and activities will be planned throughout the evening. The party starts at 7 p.m. but doors open at 6:30. Additional details at www.befierce.org The DoSeum (San Antonio Children's Museum), 2800 Broadway…

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March 2020

Los Angeles, California Rare Disease Day 2020

March 1 @ 12:30 pm - 4:00 pm
Staples Center, 1111 S Figueroa Street
Los Angeles, CA 90015 United States
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California Rare Action Network Rare Disease Day 2020 Sunday, March 1 at 12:30pm Los Angeles Clippers present NORD as Non-Profit of the game at the Staples Center, 1111 S Figueroa Street, Los Angeles, CA 90015 Tickets are available for $70 and a portion of the proceeds will go directly to help NORD fight rare diseases. Doors open at 11:00 AM and tip off is at 12:30 PM. Get Your Tickets Here

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Oakland, California Rare Disease Day 2020

March 1 @ 1:00 pm - 4:00 pm
Chabot Space & Science Center, 10000 Skyline Blvd.
Oakland, CA 94619 United States
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Sunday, March 1, 2020 from 1:00pm-4:00pm Brought to you by the California Rare Action Network, Myotonic and CalRare. Join patients, families, caregivers and all other rare disease stakeholders at this fun, family-friendly event to learn about the challenges rare disease patients face and resources available to address these challenges. You will also be able to connect with other rare families and learn how you can make a difference in the lives of rare disease patients and their families here in…

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Illinois Rare Disease Day 2020

March 4 @ 9:00 am - 12:00 pm
State House Inn, 101 E Adams Street
Springfield, 62701 United States
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Illinois Rare Disease Day Wednesday, March 4, 2020 from 9:00am-12:00pm State House Inn, 101 E Adams St, Springfield, IL 62701 Join patients, families, caregivers, medical professionals and industry representatives at this important event to discuss with Illinois Legislators the challenges rare disease patients face and learn how you can make a difference in the lives of rare disease patients and their families here in our great state of Illinois. Following the presentations and lunch there will be an opportunity for…

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Massachusetts Rare Disease Day Community Event 2020

March 4 @ 6:00 pm - 8:30 pm
Pollard Library, 401 Merrimack Street
Lowell, MA 01852 United States
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Wednesday, March 4, 2020 from 6:00pm - 8:00pm  The Pollard Library, 401 Merrimack St, Lowell, MA 01852 Massachusetts Rare Action Network invites you to connect with patients, families, caregivers, medical professionals and all stake holders at this important event to learn about the challenges rare disease patients face and learn how you can make a difference in the lives of rare disease patients and their families here in our great state of Massachusetts. CLICK HERE TO REGISTER  

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MINNESOTA BLEEDING DISORDER & RARE DISEASE AWARENESS DAY 2020

March 20 @ 11:00 am - 4:00 pm
Minnesota State Capitol, Rotunda, 75 Rev. Dr. Martin Luther King Jr Blvd
Minneapolis, MN 55155 United States
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Please join Minnesota Rare Action Network and Hemophilia Foundation of Minnesota/Dakotas for a Bleeding Disorders and Rare Disease Awareness Day at the capitol on March 20, 2020 at 1:00pm at the Minnesota State Capitol, capitol rotunda, 75 Rev. Dr. Martin Luther King Jr Blvd, St. Paul, MN 55155. Make your voice heard & tell YOUR story! Let lawmakers know how important good health care is for everyone!  Advocacy 101 Workshop will be from 11:00 a.m. – 12:30 p.m. in room 316. To RSVP…

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7th Annual Keepin’ It Renal Run/Walk

March 28
Sugar Land Memorial Park, 15300 University Blvd
Sugar Land, TX United States
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The Keepin' It Renal 5K run/walk is organized by the Chris "CJ" Johnson Foundation Inc. The purpose of the event is to raise awareness about renal medullary carcinoma (RMC), a rare and aggressive form of kidney cancer that afflicts individuals with sickle cell trait. Funds raised are utilized to continue advocacy efforts and advance research at MD Anderson Cancer Center. This event is open to the public. March 28, 2020 Sugar Land Memorial Park Sugar Land, Texas Online registration is…

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