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February 2020
Arkansas Rare Disease Day 2020
Arkansas Rare Action Network Rare Disease Day Saturday, February 29, 2020 Arkansas College of Osteopathic Medicine, 7000 Chad Colley Blvd, Fort Smith, AR 72916 Please join patients, families, caregivers, medical professionals and industry representatives at this important event to learn about the challenges rare disease patients face and learn how you can make a difference in the lives of rare disease patients and their families here in our great state of Arkansas. CLICK HERE TO REGISTER
Find out more »Rare Disease Day NYC
Rocket Pharmaceutical’s Rare Disease Day event aims to provide all who attend an opportunity to learn more about rare disease and the need for new treatment options. The event will highlight patient artists who raise awareness of their disease through their artwork. At the event, patient panelists will share their personal experiences with rare disease, and attendees will be given an opportunity to mingle with patients, caregivers, patient advocates, researchers and physicians. Rocket will also have educational materials available to…
Find out more »Rock The Causebah Concert Fundraiser in Austin, Texas
ROCK THE CAUSEBAH Fundraiser Concert for Rare Diseases February 29, 2020 from 5:30pm-11:00pm The North Door, 501 Brushy Street, Austin, Texas 78702 Live music, food, and an auction of amazing prizes from 5:30pm - 11pm. All ages are welcome and $10 at the door! Proceeds to benefit the National Organization for Rare Disorders and the Galactosemia Foundation For more information visit: https://www.facebook.com/rockthecausebah or contact Logan Greenday at [email protected]
Find out more »Be Fierce Glow Gala
Let's Glow! Join Be Fierce Foundation for a one-of-a-kind blacklight family-friendly party to help bring awareness to kids and families battling rare diseases. Feb. 29, 2020 is Rare Disease Day, so we're going big for FIERCE kids! Wear white...neon...or anything that glows as we rock The DoSeum. Snacks, sweets and activities will be planned throughout the evening. The party starts at 7 p.m. but doors open at 6:30. Additional details at www.befierce.org The DoSeum (San Antonio Children's Museum), 2800 Broadway…
Find out more »March 2020
Los Angeles, California Rare Disease Day 2020
California Rare Action Network Rare Disease Day 2020 Sunday, March 1 at 12:30pm Los Angeles Clippers present NORD as Non-Profit of the game at the Staples Center, 1111 S Figueroa Street, Los Angeles, CA 90015 Tickets are available for $70 and a portion of the proceeds will go directly to help NORD fight rare diseases. Doors open at 11:00 AM and tip off is at 12:30 PM. Get Your Tickets Here
Find out more »Oakland, California Rare Disease Day 2020
Sunday, March 1, 2020 from 1:00pm-4:00pm Brought to you by the California Rare Action Network, Myotonic and CalRare. Join patients, families, caregivers and all other rare disease stakeholders at this fun, family-friendly event to learn about the challenges rare disease patients face and resources available to address these challenges. You will also be able to connect with other rare families and learn how you can make a difference in the lives of rare disease patients and their families here in…
Find out more »Illinois Rare Disease Day 2020
Illinois Rare Disease Day Wednesday, March 4, 2020 from 9:00am-12:00pm State House Inn, 101 E Adams St, Springfield, IL 62701 Join patients, families, caregivers, medical professionals and industry representatives at this important event to discuss with Illinois Legislators the challenges rare disease patients face and learn how you can make a difference in the lives of rare disease patients and their families here in our great state of Illinois. Following the presentations and lunch there will be an opportunity for…
Find out more »Massachusetts Rare Disease Day Community Event 2020
Wednesday, March 4, 2020 from 6:00pm - 8:00pm The Pollard Library, 401 Merrimack St, Lowell, MA 01852 Massachusetts Rare Action Network invites you to connect with patients, families, caregivers, medical professionals and all stake holders at this important event to learn about the challenges rare disease patients face and learn how you can make a difference in the lives of rare disease patients and their families here in our great state of Massachusetts. CLICK HERE TO REGISTER
Find out more »MINNESOTA BLEEDING DISORDER & RARE DISEASE AWARENESS DAY 2020
Please join Minnesota Rare Action Network and Hemophilia Foundation of Minnesota/Dakotas for a Bleeding Disorders and Rare Disease Awareness Day at the capitol on March 20, 2020 at 1:00pm at the Minnesota State Capitol, capitol rotunda, 75 Rev. Dr. Martin Luther King Jr Blvd, St. Paul, MN 55155. Make your voice heard & tell YOUR story! Let lawmakers know how important good health care is for everyone! Advocacy 101 Workshop will be from 11:00 a.m. – 12:30 p.m. in room 316. To RSVP…
Find out more »7th Annual Keepin’ It Renal Run/Walk
The Keepin' It Renal 5K run/walk is organized by the Chris "CJ" Johnson Foundation Inc. The purpose of the event is to raise awareness about renal medullary carcinoma (RMC), a rare and aggressive form of kidney cancer that afflicts individuals with sickle cell trait. Funds raised are utilized to continue advocacy efforts and advance research at MD Anderson Cancer Center. This event is open to the public. March 28, 2020 Sugar Land Memorial Park Sugar Land, Texas Online registration is…
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