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Virginia Rare Disease Day Virtual Event

February 24 @ 5:30 pm - 7:00 pm

Virginia Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate Virginia legislators and the general public on the challenges faced by rare disease patients and their families. We will provide an update on where Virginia is currently in the legislative process to form a Rare Disease Advisory Council (RDAC) and discuss actions you can take to facilitate the effort to get an RDAC signed into law.

Organizer

NORD Virginia Rare Action Network
Email:
action@rarediseases.org
Website:
RareVA.org

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