Donate Now

Join RAN

Loading Events

« All Events

South Carolina Rare Disease Day Virtual Event

February 26 @ 9:00 am - 10:30 am

South Carolina Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate South Carolina legislators and the general public on the challenges faced by rare disease patients and their families. We will provide an update on where South Carolina is currently in the legislative process to form a Rare Disease Advisory Council (RDAC) and discuss actions you can take to facilitate the effort to get an RDAC signed into law.

NORD Links


Rare Disease Day Logo

Running4Rare Logo