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Rare Disease Forum
December 18, 2019 @ 6:00 pm - 8:00 pm
RARE DISEASE FORUM
at Hospital for Special Care, New Britain, CT
Wednesday, December 18, 2019 from 6:00p.m. – 8:00p.m.
Hospital for Special Care, 2150 Corbin Avenue, New Britain, CT 06503
If you, a family member, or a friend has a rare disease, please join us for an open discussion and a chance to meet other families dealing with a rare disease.
Although each rare disease is different, the challenges many Connecticut families face caring for a loved one with a rare disease are similar including: problems obtaining a diagnosis or finding appropriate medical care; trouble dealing with state agencies or health insurers; and difficulty affording medications or obtaining specialized care.
Representatives from state agencies and the CT General Assembly are being invited to participate in our discussion about available state resources for rare disease families, and state legislation (or policy changes) needed to improve the lives of those living with a rare disease.
For more information or to RSVP email [email protected]