Pennsylvania Rare Disease Day (Virtual)
February 24 @ 12:00 pm - 1:00 pmFree
NORD Pennsylvania Rare Action Network Virtual Rare Disease Day
Friday, February 24, 2023
This is a virtual event
12:00 pm – 1:00 pm
One of the greatest challenges individuals living with a rare disease, their families, and patient advocates have is finding and accessing information and resources to help them advocate for themselves and their loved ones, as well as to raise awareness of issues facing others in the community. To help alleviate these daily burdens and ensure individuals and advocates can navigate local and state-based resources, we will be hosting a Virtual State Resource Fair for the rare disease community to coincide with Rare Disease Day. There is no cost to participants to attend this event.