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Minnesota Rare Disease Day at the University of Minnesota 2020

February 28 @ 9:00 am - 2:30 pm

The Rare Disease Treatment Approval Process: Balancing Gold Standard Evidence with Patient-Centered Flexibility

Friday, February 28, 2020 from 9:00 a.m. – 2:30 p.m.

McNamara Alumni Center, 200 SE Oak St, Minneapolis, MN 55455

Keynote: Sarah Wicks, JD, MPH

Sarah Wicks is an associate at Hyman, Phelps & McNamara, P.C. where she works with sponsors to bring life-changing therapies to market, particularly for persons with rare disease. She is a graduate of the University of Maryland School of Law and Johns Hopkins School of Public Health. Through her efforts, Sarah has gained a growing appreciation for the value of patients’ experiences and the need for the patient voice to inform product development. She is dedicated to furthering the involvement of patients in rare disease drug development as well as advancing and accelerating the development of new breakthrough therapies for those with rare conditions.

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Event Agenda
9:00 a.m. – 10:30 a.m. Patient Advocacy Group Breakfast & Networking Session

10:30 a.m. – 12:00 p.m. Poster Symposium

Formal Program 12:00 p.m. – 2:30 p.m.
Video Greeting: UMN President Joan T.A. Gabel
Video Greeting: Senator Amy Klobuchar

Introduction of Rare Disease Advisory Council: Erica Barnes, RDAC Administrator
Keynote: Sarah Wicks, JD, MPH

Details

Date:
February 28
Time:
9:00 am - 2:30 pm
Event Categories:
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Event Tags:
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Website:
z.umn.edu/rare2020

Organizer

College of Pharmacy University of Minnesota
Email:
erica.barnes@rareaction.org
Website:
https://www.pharmacy.umn.edu/

Venue

McNamara Alumni Center
200 SE Oak St
Minneapolis, MN 55455 United States
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