Minnesota Rare Disease Day at the University of Minnesota 2020
February 28 @ 9:00 am - 2:30 pm
The Rare Disease Treatment Approval Process: Balancing Gold Standard Evidence with Patient-Centered Flexibility
Friday, February 28, 2020 from 9:00 a.m. – 2:30 p.m.
McNamara Alumni Center, 200 SE Oak St, Minneapolis, MN 55455
Keynote: Sarah Wicks, JD, MPH
Sarah Wicks is an associate at Hyman, Phelps & McNamara, P.C. where she works with sponsors to bring life-changing therapies to market, particularly for persons with rare disease. She is a graduate of the University of Maryland School of Law and Johns Hopkins School of Public Health. Through her efforts, Sarah has gained a growing appreciation for the value of patients’ experiences and the need for the patient voice to inform product development. She is dedicated to furthering the involvement of patients in rare disease drug development as well as advancing and accelerating the development of new breakthrough therapies for those with rare conditions.
Event Agenda
9:00 a.m. – 10:30 a.m. Patient Advocacy Group Breakfast & Networking Session
10:30 a.m. – 12:00 p.m. Poster Symposium
Formal Program 12:00 p.m. – 2:30 p.m.
Video Greeting: UMN President Joan T.A. Gabel
Video Greeting: Senator Amy Klobuchar
Introduction of Rare Disease Advisory Council: Erica Barnes, RDAC Administrator
Keynote: Sarah Wicks, JD, MPH
