Donate Now

Join RAN

Loading Events

« All Events

Florida Rare Disease Day Virtual Event

February 26 @ 10:00 am - 11:00 am

Florida Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate Florida legislators and the general public on the challenges faced by rare disease patients and their families. We will provide an update on where Florida is currently in the legislative process to form a Rare Disease Advisory Council (RDAC) and discuss actions you can take to facilitate the effort to get an RDAC signed into law.

Organizer

NORD Florida Rare Action Network
Email:
action@rarediseases.org
Website:
RareFL.org

NORD Links

NORD Logo

Rare Disease Day Logo

Running4Rare Logo