Donate Now

Join RAN

Loading Events

« All Events

Connecticut Rare Disease Day Virtual Event

February 27 @ 9:00 am - 10:30 am

Connecticut Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate Connecticut legislators and the general public on the challenges faced by rare disease patients and their families. We will provide an update on the Connecticut Rare Disease Advisory Council (RDAC) and discuss actions you can take to help influence your state’s RDAC efforts.

NORD Links

NORD Logo

Rare Disease Day Logo

Running4Rare Logo