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Connecticut Rare Disease Day Virtual Event
February 25 @ 9:00 am - 10:30 am
Please join patients, families, caregivers, and other rare disease advocates as we raise awareness and celebrate the rare disease community in Connecticut. This 90-minute virtual event will feature guest speakers from the rare community including patients, caregivers, organizational representatives, medical professionals and state legislators. Speakers will share the importance of getting a Rare Disease Advisory Council bill passed in Connecticut and ways you can help!