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Arkansas Rare Disease Day Virtual Event

February 27 @ 10:00 am - 11:30 am

Arkansas Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate Arkansas legislators and the general public on the challenges faced by rare disease patients and their families. We will provide an update on where Arkansas is currently in the legislative process to form a Rare Disease Advisory Council (RDAC) and discuss actions you can take to facilitate the effort to get an RDAC signed into law.

Organizer

NORD Arkansas Rare Action Network
Email:
tammy.jones@rareaction.org
Website:
RareAR.org

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