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Massachusetts Rare Disease Day Community Event 2020
March 4, 2020
Wednesday, March 4, 2020 from 6:00pm – 8:00pm The Pollard Library, 401 Merrimack St, Lowell, MA 01852 Massachusetts Rare Action Network invites you to connect with patients, families, caregivers, medical professionals and all stake holders at this important event to learn about the challenges rare disease patients face and learn how you can make a […]
Illinois Rare Disease Day 2020
Illinois Rare Disease Day Wednesday, March 4, 2020 from 9:00am-12:00pm State House Inn, 101 E Adams St, Springfield, IL 62701 Join patients, families, caregivers, medical professionals and industry representatives at this important event to discuss with Illinois Legislators the challenges rare disease patients face and learn how you can make a difference in the lives […]
Wisconsin Rare Disease Day 2020
February 29, 2020
Wisconsin Rare Disease Day 2020 Saturday, February 29, 2020 from 12:00pm-3:00pm Gardner Room” at the Wehr Nature Center, 9701 W. College Avenue, Franklin, WI 53132 There is no cost to participants to attend this event. Wisconsin Rare Action Network invites you to join patients, families, caregivers, medical professionals and industry representatives at this important event […]
New Hampshire Rare Disease Day Luncheon at the Common Man Restaurant
Rare Disease Day Lunch at the Common Man Restaurant Saturday, February 29, 2020 from 11:00am-2:00pm The Common Man Restaurant, 25 Water St, Concord, NH 03301 There is no cost to participants to attend this event. Please join us for lunch and connect with other patients, families, caregivers, medical professionals, industry representatives and state legislators at […]
Oklahoma Rare Disease Day 2020
Saturday, February 29, 2020 from 11:00am – 2:30pm Science Museum of Oklahoma, 2020 Remington Pl, Oklahoma City, OK Join us at the Science Museum of Oklahoma on the Rarest Day of the Year (February 29th) to celebrate people with rare disorders and advocate on their behalf at Rare Disease Day 2020. Rare Disease Day is […]
February 28, 2020
Friday, February 28, 2020 at the Georgia State Capitol, 206 Washington Street SW, Atlanta, GA. Join patients, families, caregivers, medical professionals, industry representatives and state legislators at this important event to discuss the challenges rare disease patients face and learn how you can make a difference in the lives of rare disease patients and their families […]
MassBio Massachusetts Rare Disease Day 2020
Friday, February 28, 2020 from 9:30am – 12:30pm Omni Parker House, 60 School Street, Boston, MA 02108 The last day of February has been designated as Rare Disease Day in Massachusetts to call attention to the public health issues associated with rare diseases, which affect nearly 30 million Americans and countless others around the world. […]
Kentucky Rare Disease Day 2020
February 27, 2020
February 27, 2020 from 10:30am-2:00pm Kentucky State Capitol, 700 Capitol Avenue SW, Frankfort, KY 40601 Please join Kentucky Rare Action Network patients, families, caregivers, medical professionals, industry representatives and state legislators at this important event to discuss the challenges rare disease patients face and learn how you can make a difference in the lives of […]
New York Rare Disease Day 2020 at the Capitol
Thursday, February 27, 2020 from 9:00am – 2:00pm Convening in Room 104A Legislative Office Building, State St. and Washington Ave, Albany, NY 12224 There is no cost to participants to attend this event. Please join patients, families, caregivers, medical professionals, industry representatives and state legislators at this important event. A resolution acknowledging Rare Disease Day […]
Colorado Rare Disease Day 2020
Colorado Rare Disease Day 2020 Presented by Colorado Rare Action Network and Colorado Rare Thursday, February 27, 2020 from 8:30am-2:00pm Colorado State Capitol Building, 2nd Floor West Foyer 200 E Colfax Ave, Denver, CO 80203. patients, families, caregivers, medical professionals and industry representatives at this important event to educate Colorado legislators on the challenges rare […]
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