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Massachusetts Rare Disease Day Community Event 2020
January 14, 2020
Wednesday, March 4, 2020 from 6:00pm – 8:00pm The Pollard Library, 401 Merrimack St, Lowell, MA 01852 Massachusetts RareAction Network invites you to connect with patients, families, caregivers, medical professionals […]
January 13, 2020
Friday, February 28, 2020 at the Georgia State Capitol, 206 Washington Street SW, Atlanta, GA. Join patients, families, caregivers, medical professionals, industry representatives and state legislators at this important event to […]
Illinois Rare Disease Day 2020
January 8, 2020
Illinois Rare Disease Day Wednesday, March 4, 2020 from 9:00am-12:00pm State House Inn, 101 E Adams St, Springfield, IL 62701 Join patients, families, caregivers, medical professionals and industry representatives at […]
Tucson, Arizona Rare Disease Day 2020
January 7, 2020
Tucson, Arizona Rare Disease Day Saturday, February 29, 2020 Brought to you by MECP2 Duplication Foundation and Arizona RareAction Network Tuscon Children’s Museum, 200 S 6th Ave, Tucson, AZ 85701 […]
New Hampshire Rare Disease Day Luncheon at the Common Man Restaurant
Rare Disease Day Lunch at the Common Man Restaurant Saturday, February 29, 2020 from 11:00am-2:00pm The Common Man Restaurant, 25 Water St, Concord, NH 03301 There is no cost to […]
New Hampshire Rare Disease Day Advocacy Event at the State Capitol
Rare Disease Day Advocacy Event at the State Capitol Wednesday, February 19, 2020 from 11:00am-2:00pm New Hampshire State House, Cafeteria 107 N Main St, Concord, NH 03303 There is no […]
Wisconsin Rare Disease Day 2020
Wisconsin Rare Disease Day 2020 Saturday, February 29, 2020 from 12:00pm-3:00pm Gardner Room” at the Wehr Nature Center, 9701 W. College Avenue, Franklin, WI 53132 There is no cost to […]
Colorado Rare Disease Day 2020
Colorado Rare Disease Day 2020 Presented by Colorado RareAction Network and Colorado Rare Thursday, February 27, 2020 from 8:30am-2:00pm Colorado State Capitol Building, 2nd Floor West Foyer 200 E Colfax […]
NORD Issues Statement on Increasing Use of CoPay Accumulator Programs in Health Plans
June 4, 2018
Washington, D.C., June 4, 2018 — The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement on […]
FREE RareAction Network Meetings in the Carolinas this September
July 20, 2017
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