Archives

Wednesday, March 4, 2020 from 6:00pm – 8:00pm  The Pollard Library, 401 Merrimack St, Lowell, MA 01852 Massachusetts RareAction Network invites you to connect with patients, families, caregivers, medical professionals […]

Friday, February 28, 2020 at the Georgia State Capitol, 206 Washington Street SW, Atlanta, GA. Join patients, families, caregivers, medical professionals, industry representatives and state legislators at this important event to […]

Illinois Rare Disease Day Wednesday, March 4, 2020 from 9:00am-12:00pm State House Inn, 101 E Adams St, Springfield, IL 62701 Join patients, families, caregivers, medical professionals and industry representatives at […]

Tucson, Arizona Rare Disease Day Saturday, February 29, 2020 Brought to you by MECP2 Duplication Foundation and Arizona RareAction Network Tuscon Children’s Museum, 200 S 6th Ave, Tucson, AZ 85701 […]

Rare Disease Day Lunch at the Common Man Restaurant  Saturday, February 29, 2020 from 11:00am-2:00pm The Common Man Restaurant, 25 Water St, Concord, NH 03301 There is no cost to […]

Rare Disease Day Advocacy Event at the State Capitol Wednesday, February 19, 2020 from 11:00am-2:00pm New Hampshire State House, Cafeteria 107 N Main St, Concord, NH 03303 There is no […]

Wisconsin Rare Disease Day 2020 Saturday, February 29, 2020 from 12:00pm-3:00pm Gardner Room” at the Wehr Nature Center, 9701 W. College Avenue, Franklin, WI 53132 There is no cost to […]

Colorado Rare Disease Day 2020 Presented by Colorado RareAction Network and Colorado Rare Thursday, February 27, 2020 from 8:30am-2:00pm Colorado State Capitol Building, 2nd Floor West Foyer 200 E Colfax […]

Washington, D.C., June 4, 2018 — The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement on […]