Donate Now

Join RAN

Wisconsin

Rare_WI
generic headshot

Wisconsin State Ambassador Needed
Interested in learning about the State Ambassador Program and how to apply?
Click Here

What's Happening Now?

RAN_Megephone_RGBWould you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Wisconsin’s Rare Action Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in Wisconsin.

Wisconsin needs your help!
Utilize these Rare Action resources to put rare diseases on the map in your state. If you need further assistance  or have additional questions on how to take action in Wisconsin, please contact your State Ambassador, Gina Szajnuk.

State Report Card

This Report Card serves as an evaluation of the state progress in implementing policies pertinent to the rare disease community. With it, NORD hopes to provide a road map for the rare disease community of where each state can improve and, ultimately, push forward the discussion on rare disease public policy.

WI State Report Card (2016)
Medical Foods 50%
Prescription Drug Cost Sharing 10%
Medicaid/CHIP Eligibility 90%
Newborn Screening: RUSP Secondary Conditions 80%
Biosimilar Prescriber Communication 0%
Step-Therapy Protection 0%

Scoring for State Policies

90%-100% = A

80%-89% = B

70%-79% = C

60%-69% = D

0%-59% = F

State Information

Ted Nickel, Commissioner

State of Wisconsin
Office of the Commissioner of Insurance
PO Box 7873
Madison, Wisconsin 53707

608-266-3585

In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Online Complaint Submission

Email for Assistance: ocicomplaints@wisconsin.gov
1-800-236-8517 (within Wisconsin)
1-608-266-0103 (outside of Wisconsin)

State Health Insurance Consumer Assistance Program

Consumer Assistance Program Email: ociquestions@wisconsin.gov or ocicomplaints@wisconsin.gov

Kaiser State Exchange Profile
State Reforum State Profile
State Health Insurance Website

Medicaid

Email for Assistance: dhswebmaildhcf@wisconsin.gov
1-800-362-3002

Medicaid Website
Medicaid Appeal Process

Children’s Health Insurance Program (CHIP)
Children’s Health Coverage Resources

Show pride for rare in your state
Show pride for rare in your state

Program Sponsors

Alexion Logo

Corporate Partners stand behind taking rare action with NORD. Become a Corporate Partner Today!
View All Sponsors

NORD Links

NORD Logo

Rare Disease Day Logo

Running4Rare Logo