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What's Happening Now?

Please join Washington Rare Action Network for Rare Disease Day in Spokane on Wednesday, February 28, 2018 from 12:00pm-1:00pm at the Washington State University Spokane campus.

Limited seating available,  CLICK HERE TO REGISTER TODAY!

RAN_Megephone_RGBWould you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Washington’s Rare Action Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in Washington.


Mary McDirmid
Washington State Co-Ambassador


Sandra Sermone
Washington State Co-Ambassador

In order to make meaningful change in the lives of rare disease patients and their families in the state of Washington, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.

State Report Card

This Report Card serves as an evaluation of the state progress in implementing policies pertinent to the rare disease community. With it, NORD hopes to provide a road map for the rare disease community of where each state can improve and, ultimately, push forward the discussion on rare disease public policy.

WA State Report Card (2016)
Medical Foods 70%
Prescription Drug Cost Sharing 0%
Medicaid/CHIP Eligibility 95%
Newborn Screening: RUSP Secondary Conditions 46%
Biosimilar Prescriber Communication 100%
Step-Therapy Protection 0%

Scoring for State Policies

90%-100% = A

80%-89% = B

70%-79% = C

60%-69% = D

0%-59% = F

State Information

Mike Kreidler, Commissioner

Washington State
Office of the Insurance Commissioner PO Box 40256
Olympia, Washington, 98504


In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Online Complaint Submission
Contact for Assistance


State Health Insurance Consumer Assistance Program

Consumer Assistance Program Email:

Marketplace Structure: State

810 Jefferson St. SE
Olympia, WA 98501

Marketplace Email-
1-855-WAFINDER (1-855-923-4633)
TTY/TTD 1-855-627-9604

Marketplace Contact
Marketplace Website
Enrollment Options
Plan Information
Estimate My Cost

Benefits Offered Under the Marketplace:
Essential Health Benefits
State-Required Benefits

Kaiser State Exchange Profile
State Reforum State Profile


Email for Assistance:

Medicaid Website
Eligibility Requirements

Children’s Health Insurance Program (CHIP)
Children’s Health Coverage Resources

Show pride for rare in your state
Show pride for rare in your state

Program Sponsors

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Corporate Partners stand behind taking rare action with NORD. Become a Corporate Partner Today!
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NORD Links


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