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Jana Monaco
Virginia State Ambassador

What's Happening Now?

RAN_Megephone_RGBWould you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Virginia’s Rare Action Network to attend your event? Contact your State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in Virginia.

In order to make meaningful change in the lives of rare disease patients and their families in the state of Virginia, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.

State Report Card

This Report Card serves as an evaluation of the state progress in implementing policies pertinent to the rare disease community. With it, NORD hopes to provide a road map for the rare disease community of where each state can improve and, ultimately, push forward the discussion on rare disease public policy.

VA State Report Card (2016)
Medical Foods 60%
Prescription Drug Cost Sharing 0%
Medicaid/CHIP Eligibility 38%
Newborn Screening: RUSP Secondary Conditions 62%
Biosimilar Prescriber Communication 100%
Step-Therapy Protection 0%

Scoring for State Policies

90%-100% = A

80%-89% = B

70%-79% = C

60%-69% = D

0%-59% = F

State Information

Jacqueline K. Cunningham, Commissioner

Virginia State Corporation
Commission Bureau of Insurance
PO Box 1157
Richmond, Virginia 23218


In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Online Complaint Submission

TDD 804-371-9206

State Health Insurance Consumer Assistance Program
Insurance Outreach Coordinator

Consumer Assistance Program Email: L&
Toll Free: 1-877-310-6560

Kaiser State Exchange Profile
State Reforum State Profile


Department Of Medical Assistance Services
600 East Broad Street
Richmond, Virginia 23219

Email for Assistance:

Medicaid Website
Eligibility Requirements
Medicaid Appeal Process

Children’s Health Insurance Program (CHIP)
Children’s Health Coverage Resources

Show pride for rare in your state
Show pride for rare in your state

Program Sponsors

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Corporate Partners stand behind taking rare action with NORD. Become a Corporate Partner Today!
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NORD Links


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