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What's Happening Now?

Please join Utah Rare Action Network for Rare Disease Day in Salt Lake City on Wednesday, February 28, 2018 from 3:00pm-5:00pm at the Utah State Capitol. This is an opportunity for patients, families, caregivers, medical professionals and industry representatives to come together and educate state legislators and their staff about rare diseases and the challenges patients and their families face in the state. CLICK HERE TO REGISTER TODAY!

RAN_Megephone_RGBWould you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Utah’s Rare Action Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in Utah.


Jennifer Summers
Utah State Co-Ambassador


Julie Potter
Utah State Co-Ambassador

In order to make meaningful change in the lives of rare disease patients and their families in the state of Utah, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.

State Report Card

This Report Card serves as an evaluation of the state progress in implementing policies pertinent to the rare disease community. With it, NORD hopes to provide a road map for the rare disease community of where each state can improve and, ultimately, push forward the discussion on rare disease public policy.

UT State Report Card (2016)
Medical Foods 90%
Prescription Drug Cost Sharing 10%
Medicaid/CHIP Eligibility 25%
Newborn Screening: RUSP Secondary Conditions 82%
Biosimilar Prescriber Communication 100%
Step-Therapy Protection 0%

Scoring for State Policies

90%-100% = A

80%-89% = B

70%-79% = C

60%-69% = D

0%-59% = F

State Information

Todd E. Kiser, Commissioner

Utah Insurance Department
3110 State Office Building
Salt Lake City, Utah 84114


In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Online Complaint Submission

Email for Assistance:

Salt Lake City area: 801-538-3890
In-state toll-free: 1-800-439-3805

State Health Insurance Consumer Assistance Program
Michelle White, Health Consumer Service Analyst


Marketplace Structure: Federal

For Small Businesses:

60 E. South Temple, Third Floor
Salt Lake City, Utah 84111


Marketplace Contact:
Marketplace Website

For Individuals:

Enrollment Options
Plan Information
Estimate My Cost

Benefits Offered Under the Marketplace:
Essential Health Benefits
State-Required Benefits

Kaiser State Exchange Profile
State Reforum State Profile
State Health Insurance Website


Utah Department of Health Division of Medicaid and Health Financing
P.O. Box 143106
Salt Lake City, UT 84114-3106

801-538-6155 or 1-800-662-9651

Medicaid Website
Eligibility Requirements

Children’s Health Insurance Program (CHIP)
Children’s Health Coverage Resources

Show pride for rare in your state
Show pride for rare in your state

Program Sponsors

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Corporate Partners stand behind taking rare action with NORD. Become a Corporate Partner Today!
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