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South Carolina


Kerri Nelson
South Carolina State Ambassador

What's Happening Now?

South Carolina Rare Action Network has partnered with Hemophilia of South Carolina (HSC) Advocacy Days event on Rare Disease Day! We will be joining HSC at the state capitol with an information table to educate passerby’s on rare diseases. We will also be coordinating some legislative visits while at the capitol. CLICK HERE TO REGISTER

RAN_Megephone_RGBWould you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for South Carolina’s Rare Action Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in South Carolina.

In order to make meaningful change in the lives of rare disease patients and their families in the state of South Carolina, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.

EducationalPlease join the South Carolina Rare Action Network for a free luncheon Wednesday, December 6, 2017 in Columbia, South Carolina. This networking luncheon provides the opportunity to learn all about RAN and meet the NORD RAN team. For more information and to register CLICK HERE.

State Report Card

This Report Card serves as an initial evaluation of state progress in implementing policies pertinent to the rare disease community. With it, NORD hopes to provide a road map for the rare disease community of where each state can improve and, ultimately, push forward the discussion on rare disease public policy.

SC State Report Card (2016)
Medical Foods 45%
Prescription Drug Cost Sharing 0%
Medicaid/CHIP Eligibility 43%
Newborn Screening: RUSP Secondary Conditions 96%
Biosimilar Prescriber Communication 0%
Step-Therapy Protection 0%

Scoring for State Policies

90%-100% = A

80%-89% = B

70%-79% = C

60%-69% = D

0%-59% = F

State Information

Raymond G. Farmer, Director

South Carolina Department of Insurance
PO Box 100105
Columbia, South Carolina 29202-3105


In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Online Complaint Submission

State Health Insurance Consumer Assistance Program

Email for Assistance:
or 800-768-3467 (toll free only in SC)

Show pride for rare in your state
Show pride for rare in your state

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