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Rhode Island

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Rhode Island State Ambassador Needed
Interested in learning about the State Ambassador Program and how to apply?Click Here 

What's Happening Now?

RAN_Megephone_RGBWould you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Rhode Island’s Rare Action Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in Rhode Island.

In order to make meaningful change in the lives of rare disease patients and their families in the state of Rhode Island, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.

State Report Card

This Report Card serves as an evaluation of the state progress in implementing policies pertinent to the rare disease community. With it, NORD hopes to provide a road map for the rare disease community of where each state can improve and, ultimately, push forward the discussion on rare disease public policy.

RI State Report Card (2016)
Medical Foods 90%
Prescription Drug Cost Sharing 0%
Medicaid/CHIP Eligibility 95%
Newborn Screening: RUSP Secondary Conditions 19%
Biosimilar Prescriber Communication 100%
Step-Therapy Protection 0%

Scoring for State Policies

90%-100% = A

80%-89% = B

70%-79% = C

60%-69% = D

0%-59% = F

State Information

Elizabeth Kelleher Dwyer, Deputy Director and Superintendent of Insurance

State of Rhode Island
Department of Business Regulation Division of Insurance
1511 Pontiac Avenue, Building 69-2
Cranston, Rhode Island 02920


In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Complaint Submission: Mail this form to:

1511 Pontiac Ave
Building 69 1st Floor

Email for Assistance:

State Health Insurance Consumer Assistance Program

Rhode Island Consumer Assistance Program, Rhode Island Parent Information Network
1210 Pontiac Avenue
Cranston, RI 02920

State Health Insurance Consumer Assistance Program Email


Show pride for rare in your state
Show pride for rare in your state

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