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Pennsylvania

Rare_PA
KristinSmedley

Kristin Smedley
Pennsylvania State Ambassador
kristin.smedley@rareaction.org

What's Happening Now?

RAN_Megephone_RGBWould you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Pennsylvania Rare Action Network to attend your event? Contact your State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in Pennsylvania.

In order to make meaningful change in the lives of rare disease patients and their families in the state of Pennsylvania, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.

State Report Card

This Report Card serves as an evaluation of the state progress in implementing policies pertinent to the rare disease community. With it, NORD hopes to provide a road map for the rare disease community of where each state can improve and, ultimately, push forward the discussion on rare disease public policy.

PA State Report Card (2016)
Medical Foods 70%
Prescription Drug Cost Sharing 0%
Medicaid/CHIP Eligibility 95%
Newborn Screening: RUSP Secondary Conditions 62%
Biosimilar Prescriber Communication 100%
Step-Therapy Protection 0%

Scoring for State Policies

90%-100% = A

80%-89% = B

70%-79% = C

60%-69% = D

0%-59% = F

State Information

Teresa D. Miller, Commissioner

Pennsylvania Insurance Department
1326 Strawberry Square
Harrisburg, Pennsylvania 17120

717-783-0442

In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Online Complaint Submission

1-877-881-6388 or 717-783-3898

State Health Insurance Consumer Assistance Program

Pennsylvania Consumer Assistance Program
1209 Strawberry Square
Harrisburg, PA 17111

215-560-2630 or 1-877-881-6388

Kaiser State Exchange Profile
State Reforum State Profile

Medicaid

Department of Public Welfare
P.O. Box 2675
Harrisburg PA 17105-2675

1-800-692-7462

Medicaid Website
Contact for Assistance
Medicaid Appeal Process

Children’s Health Insurance Program (CHIP)
Children’s Health Coverage Resources

Show pride for rare in your state
Show pride for rare in your state

Program Sponsors

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NORD Links

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