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What's Happening Now?

RAN_Megephone_RGBWould you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Oregon’s Rare Action Network to attend your event? Contact your State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in Oregon.


Jennifer Knapp
Oregon State Ambassador

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Penny FitzMaurice
Oregon Community Engagement Liaison

In order to make meaningful change in the lives of rare disease patients and their families in the state of Oregon, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.

State Report Card

This Report Card serves as an evaluation of the state progress in implementing policies pertinent to the rare disease community. With it, NORD hopes to provide a road map for the rare disease community of where each state can improve and, ultimately, push forward the discussion on rare disease public policy.

OR State Report Card (2016)
Medical Foods 100%
Prescription Drug Cost Sharing 0%
Medicaid/CHIP Eligibility 90%
Newborn Screening: RUSP Secondary Conditions 76%
Biosimilar Prescriber Communication 100%
Step-Therapy Protection 70%

Scoring for State Policies

90%-100% = A

80%-89% = B

70%-79% = C

60%-69% = D

0%-59% = F

State Information

Laura N. Cali, Insurance Commissioner

Oregon Dept. of Financial Regulation
PO Box 14480
Salem, Oregon 97309-0405


In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Online Complaint Submission

503-947-7984 (Salem)
888-877-4894 (toll-free)

State Health Insurance Consumer Assistance Program

1435 NE 81st Avenue
Suite 500
Portland, Oregon 97213-6759

Consumer Assistance Program Email:

Marketplace Structure: State

Cover Oregon
16760 SW Upper Boones Ferry Road
Suite 200
Durham, OR 97224

Marketplace Contact:

Marketplace Website
Enrollment Options
Plan Information
Estimate My Cost

Benefits Offered Under the Marketplace:
Essential Health Benefits
State-Required Benefits

Kaiser State Exchange Profile
State Reforum State Profile
Find your Provider


Division of Medical Assistance Programs Administrative Office
500 Summer Street NE
Salem, OR 97301-1079


Medicaid Website
Eligibility Requirements
Contact Information for Medicaid Appeals

Children’s Health Insurance Program (CHIP)
Children’s Health Coverage Resources

Show pride for rare in your state
Show pride for rare in your state

Program Sponsors

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Corporate Partners stand behind taking rare action with NORD. Become a Corporate Partner Today!
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NORD Links


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