Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for New York’s Rare Action Network to attend your event? Contact your State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in New York.
What's Happening Now?
In order to make meaningful change in the lives of rare disease patients and their families in the state of New York, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.
State Report Card
This Report Card serves as an evaluation of the state progress in implementing policies pertinent to the rare disease community. With it, NORD hopes to provide a road map for the rare disease community of where each state can improve and, ultimately, push forward the discussion on rare disease public policy.
NY State Report Card (2016)
Scoring for State Policies
90%-100% = A
80%-89% = B
70%-79% = C
60%-69% = D
0%-59% = F
Benjamin M. Lawsky, Superindendent
New York State Dept. of Financial Services
One State Street
New York, New York 10004-1511
Community Service Society: Community Health Advocates
105 East 22nd Street
New York, NY 10010
Consumer Assistance Program Email: firstname.lastname@example.org
New York State Department of Health
Empire State Plaza
Albany, NY 12237
Email for Assistance: Medicaid@health.state.ny.us
Children’s Health Insurance Program (CHIP)
Children’s Health Coverage Resources