New York

New York Rare Action Network Virtual Rare Discussion Group
Please join us on the last Sunday of each month at 3:30pm EST

Please join NORD’s New York Rare Action Network (RAN) Virtual Rare Discussion Group to exchange stories and experiences of living with or caring for someone with a rare disease. Come ready to share your concerns and ask questions. These meetings will take place on the last Sunday of each month and are open to all, you do not have to be a RAN member.

To sign up for the meetings please email [email protected]

Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for New York’s RareAction Network to attend your event? Contact your State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in New York.

In order to make meaningful change in the lives of rare disease patients and their families in the state of New York, we need you! Become active with the RareAction Network by joining and utilizing the resources available on this website to take action and create change.