New Hampshire State Ambassador
What's Happening Now?
Patient Advocacy and Orphan Drug Workshop
The National Organization for Rare Disorders invites all rare disease advocates to attend and participate in the patient advocacy and orphan drug workshop. This will be an opportunity to learn about rare disease patient advocacy and connect with NORD about current legislative actions. In addition, this workshop will feature an opportunity to speak directly with members of Congress from New Hampshire about the Orphan Drug Act.
The Centennial Hotel from 9:00am to 3:00 pm on Friday, October 5, 2018, in Concord, New Hampshire. This is a free meeting that will give attendees the opportunity to connect, learn, and share with other patient organization leaders and advocates. This event is hosted at no cost to participants. Light breakfast and lunch will be provided. CLICK HERE to Register Today!
Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for New Hampshire’s Rare Action Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in New Hampshire.
In order to make meaningful change in the lives of rare disease patients and their families in the state of New Hampshire, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.
State Report Card
In this third edition of NORD’s State Policy Report Card we are seeking to expand our analysis to more issues that affect the rare disease community while also providing a more targeted analysis of policies analyzed in previous editions of the report.
Scoring for State Policies
A: State policy meets all desired standards. An A grade is considered the model policy that other states should seek to enact.
B: State policy meets most, but not all desired standards
C: State policy on the given issue meets minimum standards
D: State has some policy in place, but it does not meet the standards of higher tiers
F: State has no policy provision for the relevant issue
Roger A. Sevigny, Commissioner
New Hampshire Insurance Department
21 South Fruit Street, Suite 14
Concord, New Hampshire 03301
Office of Medicaid Business & Policy
NH Department of Health & Human Services
129 Pleasant Street
Concord, NH 03301
800-852-3345, ext 4344 or 603-271-4344
Children’s Health Insurance Program (CHIP)
Children’s Health Coverage Resources