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Nebraska

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Nebraska State Ambassador Needed
Interested in learning about the State Ambassador Program and how to apply?Click Here 

What's Happening Now?

RAN_Megephone_RGBWould you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Nebraska’s Rare Action Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in Nebraska.

In order to make meaningful change in the lives of rare disease patients and their families in the state of Nebraska, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.

State Report Card

This Report Card serves as an evaluation of the state progress in implementing policies pertinent to the rare disease community. With it, NORD hopes to provide a road map for the rare disease community of where each state can improve and, ultimately, push forward the discussion on rare disease public policy.

NE State Report Card (2016)
Medical Foods 80%
Prescription Drug Cost Sharing 0%
Medicaid/CHIP Eligibility 43%
Newborn Screening: RUSP Secondary Conditions 83%
Biosimilar Prescriber Communication 0%
Step-Therapy Protection 0%

Scoring for State Policies

90%-100% = A

80%-89% = B

70%-79% = C

60%-69% = D

0%-59% = F

State Information

Bruce R. Ramge, Director

Nebraska Department of Insurance
PO Box 82089
Lincoln, NE 68501-2089

402-471-2201

In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Online Complaint Submission

402-471-2201 or 877-564-7323

Kaiser State Exchange Profile
State Reforum State Profile

Medicaid

402-471-9147 or 800- 358-8802

Eligibility Requirements: 800-642-6092

Medicaid Website
Medicaid Appeal Process

Children’s Health Insurance Program (CHIP)
Children’s Health Coverage Resources

Show pride for rare in your state
Show pride for rare in your state

Program Sponsors

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Corporate Partners stand behind taking rare action with NORD. Become a Corporate Partner Today!
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NORD Links

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