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Julie Atkin
Missouri State Ambassador

What's Happening Now?

RAN_Megephone_RGBWould you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Missouri’s Rare Action Network to attend your event? Contact your State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in Missouri.

In order to make meaningful change in the lives of rare disease patients and their families in the state of Missouri, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.

State Report Card

This Report Card serves as an evaluation of the state progress in implementing policies pertinent to the rare disease community. With it, NORD hopes to provide a road map for the rare disease community of where each state can improve and, ultimately, push forward the discussion on rare disease public policy.

MO State Report Card (2016)
Medical Foods 85%
Prescription Drug Cost Sharing 10%
Medicaid/CHIP Eligibility 43%
Newborn Screening: RUSP Secondary Conditions 92%
Biosimilar Prescriber Communication 70%
Step-Therapy Protection 70%

Scoring for State Policies

90%-100% = A

80%-89% = B

70%-79% = C

60%-69% = D

0%-59% = F

State Information

Chlora Lindley-Myers, Director

Missouri Department of Insurance
Financial Institutions and Professional Registration (DIFP)
PO Box 690
Jefferson City, Missouri 65102-0690


In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Online Complaint Submission


State Health Insurance Consumer Assistance Program

Missouri Department of Insurance
301 W. High St, Room 830
Jefferson City, MO 65101

Consumer Assistance Program Email:

Kaiser State Exchange Profile
State Reforum State Profile
State Health Insurance Website


The State of Missouri
MO HealthNet Division
615 Howerton
P.O. Box 6500
Jefferson City, MO 65102-6500

Email for Assistance:

Medicaid Website
Eligibility Requirements

Children’s Health Insurance Program (CHIP)
Children’s Health Coverage Resources

Show pride for rare in your state
Show pride for rare in your state

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