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Attention Minnesota Advocates!
Want to learn more about the Minnesota Rare Action Network and how you can get involved? Come out and meet your Minnesota State Ambassador at the Southdale Library the last Thursday of every month from 7:00 pm to 8:30 pm! It is a great time to network with other advocates and discuss issues facing the Minnesota Rare Disease community. Please RSVP to Erica Barnes, erica.barnes@rareaction.org

UofMUniversity of Minnesota 2018 Rare Disease Day

Friday, February 23, 2018 11 AM to 2:30 PM

Click here for more information 

Erica Profile Pic

Erica Barnes
Minnesota State Ambassador
erica.barnes@rareaction.org

Me

Kay Lewis
Minnesota Community Engagement Liaison 
kay.lewis@rareaction.org

Please join Minnesota Rare Action Network for Rare Disease Day in Minneapolis on Wednesday, February 28, 2018 from 10:00am-12:00pm at the Minnesota State Capitol. This is an opportunity for patients, families, caregivers, medical professionals and industry representatives to come together and educate state legislators and their staff about rare diseases and the challenges patients and their families face in the state. CLICK HERE TO REGISTER TODAY!

RAN_Megephone_RGBWould you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Minnesota’s Rare Action Network to attend your event? Contact your State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in Minnesota.

State Report Card

This Report Card serves as an evaluation of the state progress in implementing policies pertinent to the rare disease community. With it, NORD hopes to provide a road map for the rare disease community of where each state can improve and, ultimately, push forward the discussion on rare disease public policy.

MN State Report Card (2016)
Medical Foods 90%
Prescription Drug Cost Sharing 0%
Medicaid/CHIP Eligibility 100%
Newborn Screening: RUSP Secondary Conditions 100%
Biosimilar Prescriber Communication 0%
Step-Therapy Protection 0%

Scoring for State Policies

90%-100% = A

80%-89% = B

70%-79% = C

60%-69% = D

0%-59% = F

State Information

Mike Rothman, Commissioner

Minnesota Department of Commerce
85 7th Place East, Suite 280
St. Paul, Minnesota 55101

651-539-1500

In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Online Complaint Submission

Twin cities: 651-296-2488
Statewide toll free: 800-657-3602

State Health Insurance Consumer Assistance Program

Ombudsman for State Managed Health Care Programs
PO Box 64249
St. Paul, MN 55164-0249

651-431-2660 or 800-657-3729

Marketplace Structure: State

MNsure
Golden Rule Building
85 -7th Place East, Suite 120
St. Paul, MN 55101-2198

Marketplace Contact: publicfeedback@mnsure.org
651-284-4101

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