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What's Happening Now?

RAN_Megephone_RGBWould you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Massachusetts’ Rare Action Network to attend your event? Contact your State Ambassadors today and learn more. Please check back regularly for news of upcoming events and activities in Massachusetts.

In order to make meaningful change in the lives of rare disease patients and their families in the state of Massachusetts, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.

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Alan Holbrook
Massachusetts State Ambassador

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Amy Patterson
Community Engagement Liaison


Megan Wirth
Community Engagement Liaison


State Report Card

In this third edition of NORD’s State Policy Report Card we are seeking to expand our analysis to more issues that affect the rare disease community while also providing a more targeted analysis of policies analyzed in previous editions of the report.

State Report Card_MA

Scoring for State Policies

A: State policy meets all desired standards. An A grade is considered the model policy that other states should seek to enact.

B: State policy meets most, but not all desired standards

C: State policy on the given issue meets minimum standards

D: State has some policy in place, but it does not meet the standards of higher tiers

F: State has no policy provision for the relevant issue

State Information

Gary D. Anderson, Acting Commissioner

Office of Consumer Affairs and Business Regulation (OCABR)
Massachusetts Division of Insurance
1000 Washington Street, 8th Floor
Boston, Massachusetts 02118-6200


In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Complaint Submission- Mail this form to:

1000 Washington Street
Suite 810
Boston, MA 02118

Email for Assistance:
617-521-7794 or 877-563-4467

State Health Insurance Consumer Assistance Program
Kathryn Bicego, Consumer Assistance Program Manager

Massachusetts Consumer Assistance Program
30 Winter Street, 10th Floor
Boston, MA 02108
617-350-7279 or 800-272-4232

Consumer Assistance Program Website

Kaiser State Exchange Profile
State Reforum State Profile


MassHealth Enrollment Center – Chelsea
45-47 Spruce Street
Chelsea, MA 02150

Email for Assistance:
1-888-665-9993 or 1-888-665-9997

Medicaid Website
Eligibility Requirements

Children’s Health Insurance Program (CHIP)
Children’s Health Coverage Resources

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Show pride for rare in your state

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