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Iowa

Rare_IA
family

Sharon Ponce
Iowa State Ambassador
sharon.ponce@rareaction.org

What's Happening Now?

RAN_Megephone_RGBWould you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Iowa’s Rare Action Network to attend your event? Contact your State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in Iowa.

Past Events

Sharon recently hosted a community outreach event right outside of her local Walmart. What a great way to raise awareness for rare disease!

In order to make meaningful change in the lives of rare disease patients and their families in the state of Iowa, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.

State Report Card

This Report Card serves as an evaluation of the state progress in implementing policies pertinent to the rare disease community. With it, NORD hopes to provide a road map for the rare disease community of where each state can improve and, ultimately, push forward the discussion on rare disease public policy.

IA Report Card (2016)
Medical Foods 35%
Prescription Drug Cost Sharing 0%
Medicaid/CHIP Eligibility 95%
Newborn Screening: RUSP Secondary Conditions 88%
Biosimilar Prescriber Communication 0%
Step-Therapy Protection 0%

Scoring for State Policies

90%-100% = A

80%-89% = B

70%-79% = C

60%-69% = D

0%-59% = F

State Information

Doug Ommen, Commissioner

Iowa Insurance Division
Two Ruan Center, 601 Locust, 4th Floor
Des Moines, IA 50309-3438

515-281-5705

In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Online Complaint Submission

1-877-955-1212

State Health Insurance Consumer Assistance Program
Angel Robinson, Consumer Advocate

Iowa Insurance Division
330 Maple Street
Des Moines, Iowa 50319-0065

515-281-4038

Consumer Assistance Program Email: insuranceca@iid.iowa.gov

Kaiser State Exchange Profile
State Reforum State Profile

Medicaid

Iowa Medicaid Enterprise 100 Army Post Road
Des Moines, Iowa 50315

800-338-8366
Email for Assistance: IMEMemberServices@dhs.state.ia.us

Medicaid Website
Eligibility Requirements
Medicaid Appeal Process

Children’s Health Insurance Program (CHIP)
Children’s Health Coverage Resources

Show pride for rare  in your state
Show pride for rare in your state

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