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Illinois

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Illinois State Ambassador Needed
Interested in learning about the State Ambassador Program and how to apply?Click Here 

What's Happening Now?

RAN_Megephone_RGBWould you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Illinois’ Rare Action Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in Illinois.

In order to make meaningful change in the lives of rare disease patients and their families in the state of Illinois, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.

State Report Card

This Report Card serves as an evaluation of the state progress in implementing policies pertinent to the rare disease community. With it, NORD hopes to provide a road map for the rare disease community of where each state can improve and, ultimately, push forward the discussion on rare disease public policy.

IL State Report Card (2016)
Medical Foods 80%
Prescription Drug Cost Sharing 0%
Medicaid/CHIP Eligibility 90%
Newborn Screening: RUSP Secondary Conditions 86%
Biosimilar Prescriber Communication 100%
Step-Therapy Protection 70%

Scoring for State Policies

90%-100% = A

80%-89% = B

70%-79% = C

60%-69% = D

0%-59% = F

State Information

Jennifer Hammer, Director

Illinois Department of Insurance
320 W. Washington Street
Springfield, Illinois 62767-0001

217-782-4515

In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Online Complaint Submission

866-445-5364

State Health Insurance Consumer Assistance Program
877-527-9431

Ombudsman Website

Kaiser State Exchange Profile
State Reforum State Profile

Medicaid

217-782-2570
Email for Assistance: hfs.webmaster@illinois.gov

Medicaid Website
Medicaid Appeals and Fair Hearing Process

Children’s Health Insurance Program (CHIP)
Children’s Health Coverage Resources

Show pride for rare in your state
Show pride for rare in your state

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NORD Links

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