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Illinois

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NORD-Rare Action Network-Maria-Illinois

Maria Bellefeuille
Illinois State Ambassador
maria.bellefeuille@rareaction.org

What's Happening Now?

RAN_Megephone_RGBWould you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Illinois’ Rare Action Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in Illinois.

In order to make meaningful change in the lives of rare disease patients and their families in the state of Illinois, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.

State Report Card

In this third edition of NORD’s State Policy Report Card we are seeking to expand our analysis to more issues that affect the rare disease community while also providing a more targeted analysis of policies analyzed in previous editions of the report.

State Report Card_IL

Scoring for State Policies

A: State policy meets all desired standards. An A grade is considered the model policy that other states should seek to enact.

B: State policy meets most, but not all desired standards

C: State policy on the given issue meets minimum standards

D: State has some policy in place, but it does not meet the standards of higher tiers

F: State has no policy provision for the relevant issue

State Information

Jennifer Hammer, Director

Illinois Department of Insurance
320 W. Washington Street
Springfield, Illinois 62767-0001

217-782-4515

In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Online Complaint Submission

866-445-5364

State Health Insurance Consumer Assistance Program
877-527-9431

Ombudsman Website

Kaiser State Exchange Profile
State Reforum State Profile

Medicaid

217-782-2570
Email for Assistance: hfs.webmaster@illinois.gov

Medicaid Website
Medicaid Appeals and Fair Hearing Process

Children’s Health Insurance Program (CHIP)
Children’s Health Coverage Resources

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Show pride for rare in your state

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