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What's Happening Now?

EducationalThe National Organization for Rare Disorders invites all advocates to attend and participate in the Rare Action Network Advocacy Workshop Luncheon at Maggiano’s Little Italy Orlando from 11:00am to 3:00 pm on Tuesday, March 27, 2018, in Orlando, Florida. This is a free meeting that will give attendees the opportunity to connect, learn, and share with other patient organization leaders and advocates. This event is hosted at no cost to participants. CLICK HERE to register.

Hokkanen-Aug2016 (7)

Fran Hokkanen
Florida State Co-Ambassador
fran.hokkanen@rareaction.org

B2246BAE-EBDA-424D-908E-02E3CC0F90E9

Jhoanny Cardenas
Florida State Co-Ambassador
jhoanny.cardenas@rareaction.org

RAN_Megephone_RGBWould you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Florida’s Rare Action Network to attend your event? Contact your State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in Florida.

Florida needs your help!
Utilize these Rare Action resources to put rare diseases on the map in your state. If you need further assistance  or have additional questions on how to take action in Florida, please contact your State Ambassador, Fran Hokkanen.

State Report Card

In this third edition of NORD’s State Policy Report Card we are seeking to expand our analysis to more issues that affect the rare disease community while also providing a more targeted analysis of policies analyzed in previous editions of the report.

State Report Card_FL

Scoring for State Policies

A: State policy meets all desired standards. An A grade is considered the model policy that other states should seek to enact.

B: State policy meets most, but not all desired standards

C: State policy on the given issue meets minimum standards

D: State has some policy in place, but it does not meet the standards of higher tiers

F: State has no policy provision for the relevant issue

State Information

Greg Thomas, Commissioner

Office of Insurance Regulation
The Larson Building
200 E. Gaines Street, Rm 101A
Tallahassee, Florida 32399-0305

850-413-5914

In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Online Complaint Submission

Email for Assistance: Consumer.Services@myfloridacfo.com
1-877-MY-FL-CFO (1-877-693-5236)
Out of State Callers: 850-413-3089

Show pride for rare in your state
Show pride for rare in your state

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