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What's Happening Now?

RAN_Megephone_RGBWould you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Florida’s Rare Action Network to attend your event? Contact your State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in Florida.

Hokkanen-Aug2016 (7)

Fran Hokkanen
Florida State Ambassador
fran.hokkanen@rareaction.org

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Jhoanny Cardenas
Florida Community Engagement Liaison
jhoanny.cardenas@rareaction.org

Florida needs your help!
Utilize these Rare Action resources to put rare diseases on the map in your state. If you need further assistance  or have additional questions on how to take action in Florida, please contact your State Ambassador, Fran Hokkanen.

State Report Card

This Report Card serves as an evaluation of the state progress in implementing policies pertinent to the rare disease community. With it, NORD hopes to provide a road map for the rare disease community of where each state can improve and, ultimately, push forward the discussion on rare disease public policy.

FL State Report Card (2016)
Medical Foods 90%
Prescription Drug Cost Sharing 10%
Medicaid/CHIP Eligibility 43%
Newborn Screening: RUSP Secondary Conditions 60%
Biosimilar Prescriber Communication 100%
Step-Therapy Protection 0%

Scoring for State Policies

90%-100% = A

80%-89% = B

70%-79% = C

60%-69% = D

0%-59% = F

State Information

Greg Thomas, Commissioner

Office of Insurance Regulation
The Larson Building
200 E. Gaines Street, Rm 101A
Tallahassee, Florida 32399-0305

850-413-5914

In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Online Complaint Submission

Email for Assistance: Consumer.Services@myfloridacfo.com
1-877-MY-FL-CFO (1-877-693-5236)
Out of State Callers: 850-413-3089

Show pride for rare in your state
Show pride for rare in your state

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