Donate Now

Join RAN

Delaware

Rare_DE
generic headshot

Delaware State Ambassador Needed
Interested in learning about the State Ambassador Program and how to apply?Click Here 

What's Happening Now?

RAN_Megephone_RGBWould you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Delaware’s Rare Action Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in Delaware.

In order to make meaningful change in the lives of rare disease patients and their families in the state of Delaware, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.

State Report Card

This Report Card serves as an evaluation of the state progress in implementing policies pertinent to the rare disease community. With it, NORD hopes to provide a road map for the rare disease community of where each state can improve and, ultimately, push forward the discussion on rare disease public policy.

DE State Report Card (2016)
Medical Foods 85%
Prescription Drug Cost Sharing 80%
Medicaid/CHIP Eligibility 95%
Newborn Screening: RUSP Secondary Conditions 80%
Biosimilar Prescriber Communication 100%
Step-Therapy Protection 0%

Scoring for State Policies

90%-100% = A

80%-89% = B

70%-79% = C

60%-69% = D

0%-59% = F

State Information

Trinidad Navarro, Commissioner

Delaware Department of Insurance
841 Silver Lake Boulevard
Dover, Delaware 19904

302-674-7300

In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Online Complaint Submission

Email for Assistance: consumer@state.de.us
1-800-282-8611 in Delaware
or 302-674-7310

State Health Insurance Consumer Assistance Program
Michael Gould, Manager of Consumer Services and Investigations

Marketplace Structure: Partnership

1-800-318-2596
TTY: 1-855-889-4325

Marketplace Website
Enrollment Options
Plan Information
Estimate My Cost

Benefits Offered Under the Marketplace:
Essential Health Benefits
State-Required Benefits

Kaiser State Exchange Profile
State Reforum State Profile

Medicaid

Lewis Building
Herman Holloway Sr. Campus
1901 N. DuPont Highway
New Castle, Delaware 19720

800-464-HELP

Medicaid Website
Eligibility Requirements

Children’s Health Insurance Program (CHIP)
Children’s Health Coverage Resources

Show pride for rare in your state
Show pride for rare in your state

Program Sponsors

BioMarin Logo

Corporate Partners stand behind taking rare action with NORD. Become a Corporate Partner Today!
View All Sponsors

NORD Links

NORD Logo

Rare Disease Day Logo

Running4Rare Logo