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What's Happening Now?

RAN_Megephone_RGBWould you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Connecticut’s Rare Action Network to attend your event? Contact your State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in Connecticut.

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Lesley Bennett
Connecticut State Ambassador
lesley.bennett@rareaction.org

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Greta Stifel
Connecticut Community Engagement Liaison
greta.stifel@rareaction.org

Past Events

Running for Rare took on the Hartford Marathon on October 8, 2016! Community members joined together to support over a dozen runners as they completed half and full marathons! The Running for Rare team participates in marathons across the country to build community and raise awareness for rare diseases.

Learn more about the Running for Rare team.

Connecticut needs your help!
Utilize these Rare Action resources to put rare diseases on the map in your state. If you need further assistance  or have additional questions on how to take action in Connecticut, please contact your State Ambassador, Lesley Bennett.

State Report Card

This Report Card serves as an evaluation of the state progress in implementing policies pertinent to the rare disease community. With it, NORD hopes to provide a road map for the rare disease community of where each state can improve and, ultimately, push forward the discussion on rare disease public policy.

CT Rare Disease Report Card (2016)
Medical Foods 100%
Prescription Drug Cost Sharing 0%
Medicaid/CHIP Eligibility 100%
Newborn Screening: RUSP Secondary Conditions 88%
Biosimilar Prescriber Communication 0%
Step-Therapy Protection 100%

Scoring for State Policies

90%-100% = A

80%-89% = B

70%-79% = C

60%-69% = D

0%-59% = F

State Information

Katharine Wade, Commissioner

Connecticut Insurance Department
PO Box 816
Hartford, Connecticut 06142-0816

860-297-3800

In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Online Complaint Submission

Email for Assistance: cid.ca@ct.gov
800-203-3447

State Health Insurance Consumer Assistance Program
Victoria Veltri, Healthcare Advocate

Office of the Healthcare Advocate
P.O.BOX 1543
Hartford CT,06144

860-331-2441

Consumer Assistance Program Email:
Healthcare.advocate@ct.gov or Victoria.Veltri@CT.Gov

Marketplace Structure: State

Access Health CT
280 Trumbull Street, 15th Floor
Hartford, CT 06103

1-800-318-2596
TTY: 1-855-889-4325

Marketplace Contact: Questions@AccessHealthCT.com

Marketplace Website
Enrollment Options
Plan Information
Estimate My Cost

Benefits Offered Under the Marketplace:
Essential Health Benefits
State-Required Benefits

Kaiser State Exchange Profile
State Reforum State Profile

Medicaid

25 Sigourney Street
Hartford, CT 06106-5033

1-800-842-1508 or 800- 842-4524

Medicaid Website
Eligibility Requirements
Medicaid Fair Hearing Rights

Children’s Health Insurance Program (CHIP)
Children’s Health Coverage Resources

Show pride for rare in your state
Show pride for rare in your state

Program Sponsors

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Corporate Partners stand behind taking rare action with NORD. Become a Corporate Partner Today!
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NORD Links

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