Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Connecticut’s Rare Action Network to attend your event? Contact your State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in Connecticut.
What's Happening Now?
Running for Rare took on the Hartford Marathon on October 8, 2016! Community members joined together to support over a dozen runners as they completed half and full marathons! The Running for Rare team participates in marathons across the country to build community and raise awareness for rare diseases.
Connecticut needs your help!
Utilize these Rare Action resources to put rare diseases on the map in your state. If you need further assistance or have additional questions on how to take action in Connecticut, please contact your State Ambassador, Lesley Bennett.
State Report Card
This Report Card serves as an evaluation of the state progress in implementing policies pertinent to the rare disease community. With it, NORD hopes to provide a road map for the rare disease community of where each state can improve and, ultimately, push forward the discussion on rare disease public policy.
CT Rare Disease Report Card (2016)
Scoring for State Policies
90%-100% = A
80%-89% = B
70%-79% = C
60%-69% = D
0%-59% = F
Katharine Wade, Commissioner
Connecticut Insurance Department
PO Box 816
Hartford, Connecticut 06142-0816
Email for Assistance: email@example.com
State Health Insurance Consumer Assistance Program
Victoria Veltri, Healthcare Advocate
Office of the Healthcare Advocate
Consumer Assistance Program Email:
Healthcare.firstname.lastname@example.org or Victoria.Veltri@CT.Gov
Marketplace Structure: State
Access Health CT
280 Trumbull Street, 15th Floor
Hartford, CT 06103
Marketplace Contact: Questions@AccessHealthCT.com