Donate Now

Join RAN

Connecticut

Rare_CT
photo

Lesley Bennett
Connecticut State Ambassador
lesley.bennett@rareaction.org

What's Happening Now?

Running4RareAre you looking to participate in a race this fall? If so, we’d love for you to join our Running for Rare Hartford Team! Applications are now open for the Hartford Half & Full Marathons. We’ve also added the Hartford Charity 5K for those of you looking for a shorter distance.

To apply visit: rarediseases.org/runningteam

We hope to see you in Hartford!

RAN_Megephone_RGBWould you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Connecticut’s Rare Action Network to attend your event? Contact your State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in Connecticut.

Past Events

NORD-Rare Action-ConnecticutThe National Organization for Rare Disorders hosted a Rare Action Network Advocacy Workshop on April 23 in Hartford, Connecticut. This was a free meeting that gave attendees the opportunity to connect, learn, and share with other patient organization leaders and advocates. There was also an opportunity for attendees to accompany a group of advocates to the state capitol for legislative visits on April 24.

Connecticut needs your help!
Utilize these Rare Action resources to put rare diseases on the map in your state. If you need further assistance  or have additional questions on how to take action in Connecticut, please contact your State Ambassador, Lesley Bennett.

State Report Card

In this third edition of NORD’s State Policy Report Card we are seeking to expand our analysis to more issues that affect the rare disease community while also providing a more targeted analysis of policies analyzed in previous editions of the report.

State Report Card_CT

Scoring for State Policies

A: State policy meets all desired standards. An A grade is considered the model policy that other states should seek to enact.

B: State policy meets most, but not all desired standards

C: State policy on the given issue meets minimum standards

D: State has some policy in place, but it does not meet the standards of higher tiers

F: State has no policy provision for the relevant issue

State Information

Katharine Wade, Commissioner

Connecticut Insurance Department
PO Box 816
Hartford, Connecticut 06142-0816

860-297-3800

In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Online Complaint Submission

Email for Assistance: cid.ca@ct.gov
800-203-3447

State Health Insurance Consumer Assistance Program
Victoria Veltri, Healthcare Advocate

Office of the Healthcare Advocate
P.O.BOX 1543
Hartford CT,06144

860-331-2441

Consumer Assistance Program Email:
Healthcare.advocate@ct.gov or Victoria.Veltri@CT.Gov

Marketplace Structure: State

Access Health CT
280 Trumbull Street, 15th Floor
Hartford, CT 06103

1-800-318-2596
TTY: 1-855-889-4325

Marketplace Contact: Questions@AccessHealthCT.com

Marketplace Website
Enrollment Options
Plan Information
Estimate My Cost

Benefits Offered Under the Marketplace:
Essential Health Benefits
State-Required Benefits

Kaiser State Exchange Profile
State Reforum State Profile

Medicaid

25 Sigourney Street
Hartford, CT 06106-5033

1-800-842-1508 or 800- 842-4524

Medicaid Website
Eligibility Requirements
Medicaid Fair Hearing Rights

Children’s Health Insurance Program (CHIP)
Children’s Health Coverage Resources

Show pride for rare in your state
Show pride for rare in your state

Program Sponsors

Genentech Logo

Corporate Partners stand behind taking rare action with NORD. Become a Corporate Partner Today!
View All Sponsors

NORD Links

NORD Logo

Rare Disease Day Logo

Running4Rare Logo