Connecticut State Ambassador
What's Happening Now?
CT RAN Advocacy Workshop in Hartford!
The National Organization for Rare Disorders invites all advocates to attend and participate in the Rare Action Network Advocacy Workshop on April 23 in Hartford, Connecticut from 8:00am-3:00pm. This is a free meeting that will give attendees the opportunity to connect, learn, and share with other patient organization leaders and advocates.
There is no cost to attend this event and breakfast and lunch will be provided.
There will also be an opportunity for select individuals to accompany a group of advocates to the state capitol for legislative visits on April 24. If you are interested in participating in these meetings you may select that option during the registration process.
Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Connecticut’s Rare Action Network to attend your event? Contact your State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in Connecticut.
Running for Rare took on the Hartford Marathon on October 8, 2016! Community members joined together to support over a dozen runners as they completed half and full marathons! The Running for Rare team participates in marathons across the country to build community and raise awareness for rare diseases.
Connecticut needs your help!
Utilize these Rare Action resources to put rare diseases on the map in your state. If you need further assistance or have additional questions on how to take action in Connecticut, please contact your State Ambassador, Lesley Bennett.
State Report Card
In this third edition of NORD’s State Policy Report Card we are seeking to expand our analysis to more issues that affect the rare disease community while also providing a more targeted analysis of policies analyzed in previous editions of the report.
Scoring for State Policies
A: State policy meets all desired standards. An A grade is considered the model policy that other states should seek to enact.
B: State policy meets most, but not all desired standards
C: State policy on the given issue meets minimum standards
D: State has some policy in place, but it does not meet the standards of higher tiers
F: State has no policy provision for the relevant issue
Katharine Wade, Commissioner
Connecticut Insurance Department
PO Box 816
Hartford, Connecticut 06142-0816
Email for Assistance: firstname.lastname@example.org
State Health Insurance Consumer Assistance Program
Victoria Veltri, Healthcare Advocate
Office of the Healthcare Advocate
Consumer Assistance Program Email:
Healthcare.email@example.com or Victoria.Veltri@CT.Gov
Marketplace Structure: State
Access Health CT
280 Trumbull Street, 15th Floor
Hartford, CT 06103
Marketplace Contact: Questions@AccessHealthCT.com