Donate Now

Join RAN

Legislative Tracker

Legislative_TrackerThe Rare Action Network offers a quarterly legislative tracker to subscribers with updates on the bills that are important to improving the lives of people and families in the rare disease community. An archive of these alerts are posted below.

 

Frequently Asked Questions:

How do I get my state on the list?

Contact Tim Boyd at tboyd@rarediseases.org to get bills specific to the issues you are facing on the list.

What should I do with this information?

Spread the word! Help us increase awareness of the issues to key decision-makers and elected officials in state or regions that can take action to make essential changes. Join the conversation online by following @rarediseases or #rareaction

Receive the legislative tracker reports sooner by joining the Rare Action Network.

Program Sponsors

BioMarin Logo

Corporate Partners stand behind taking rare action with NORD. Become a Corporate Partner Today!
View All Sponsors

NORD Links

NORD Logo

Rare Disease Day Logo

Running4Rare Logo