The Hill, a top U.S. political website, read by Congressional offices, the White House, political pundits, and more, today published the following op-ed by NORD President and CEO, Peter L. Saltonstall, urging Congress to reauthorize the Rare Pediatric Disease Priority Review Voucher (PRV) program.
The PRV program encourages the development of therapies for children with rare diseases. More than half of the 30 million Americans with rare diseases are kids. The majority of rare diseases have no treatment.
We need your help! Congress can reauthorize the program but must act before September 30 when the bill is set to expire. Make sure this bill does not cease to exist. Please join us in advocating for the reauthorization of this important program. Click here to tell your Senators to pass this bill today.
The following op-ed was originally published in The Hill: http://thehill.com/blogs/congress-blog/healthcare/296004-congress-must-act-now-to-help-15-million-sick-children
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