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Members of the Rare Action Network℠ are part of 30+ million person community working towards improving the lives of patients with rare diseases.  This expansive network enables you to:

  • Connect with other patients, caregivers, and stakeholders, within your state and region through calls, webinars, and in-person meetings
  • Participate in regional and local events to connect, learn and address the nation’s leading issues
  • Develop relationships with key decision-makers and opinion leaders
  • Share your story to help other patients by raising awareness
  • Receive news and information on what the network is taking action on and participate in the network’s Calls to Action
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