To help drive the efforts of the Rare Action Network℠, NORD launched the State Ambassador Program.
State Ambassadors are volunteers in a leadership position responsible for establishing and building a strong grassroots network of rare disease advocates within their state to help increase awareness of rare diseases and the challenges patients and their families face.
State Ambassadors serve as official liaisons between NORD, their state networks, state agencies and officials working towards improving the quality of life of patients and their families.
NORD Rare Action Network℠ team is committed to our volunteers engagement and contributions to the rare disease community. We are devoted to providing a worthwhile and impactful volunteer experience through the State Ambassador Program.