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SUMMARY:Students for Rare New Chapter Info Session - July
DESCRIPTION:Are you a collegiate student interested in starting a NORD Students for Rare chapter on campus? Come and learn more about the program and next steps during our New Chapter Info Session! Our July session will take place on July 7 at 6:00 p.m. ET. We look forward to seeing you there!\nRegister Here
URL:http://rareaction.org/event/students-for-rare-new-chapter-info-session-july/
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DTSTART;TZID=UTC:20260719T090000
DTEND;TZID=UTC:20260719T120000
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SUMMARY:Hoops for Hunter Syndrome
DESCRIPTION:Shoot Hoops. Raise Hope. Change Lives. \nJoin Project Alive on July 19 for Hoops for Hunter Syndrome\, a fun-filled basketball event benefiting Project Alive and the Hunter syndrome community! \nDate: July 19\, 2026\nTime: 9:00 AM – 12:00 PM\nLocation: Ranch Sports Facility \nThis special event was inspired by a family’s love for basketball and their determination to create a brighter future for those living with Hunter syndrome. \nWhat you can expect: \n\nBasketball Tournament\nFamily-Friendly Fun\nSupport a Meaningful Cause\nMake a Difference for Rare Disease Families\n\nRegister Here
URL:http://rareaction.org/event/hoops-for-hunter-syndrome/
LOCATION:Ranch Sports Facility\, 16067 Euclid Ave\, Chino\, CA\, 91708\, United States
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DTSTART;TZID=UTC:20260722T130000
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SUMMARY:Webinar: State Legislative Session Recap
DESCRIPTION:As state legislative sessions wind down\, join NORD’s Rare Action Network (RAN) for an end of session policy & advocacy wrap up. During this webinar\, we’ll discuss bills we tracked across the country\, celebrate our hard-fought advocacy wins\, and identify key opportunities for growth and improvement. We’ll also discuss potential areas of focus as we head towards 2027! \nRegister Here
URL:http://rareaction.org/event/webinar-state-legislative-session-recap/
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DTSTART;TZID=America/New_York:20260730T150000
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SUMMARY:Webinar: Overcoming Insurance Barriers
DESCRIPTION:If you are impacted by a rare disease\, you are likely spending countless hours navigating health insurance. In this session\, we will discuss common insurance barriers faced by patients and caregivers living with a rare disease\, and tips to overcome them. This panel incorporates several unique perspectives for every step in your journey that you won’t want to miss! \nRegister
URL:http://rareaction.org/event/living-rare-living-stronger-summer-webinar-series/
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