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X-WR-CALNAME:- Rare Action Network®
X-ORIGINAL-URL:http://rareaction.org
X-WR-CALDESC:Events for - Rare Action Network®
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DTSTART;TZID=UTC:20260707T180000
DTEND;TZID=UTC:20260707T190000
DTSTAMP:20260812T070835
CREATED:20260630T195409Z
LAST-MODIFIED:20260730T002206Z
UID:10000060-1783447200-1783450800@rareaction.org
SUMMARY:Students for Rare New Chapter Info Session - July
DESCRIPTION:Are you a collegiate student interested in starting a NORD Students for Rare chapter on campus? Come and learn more about the program and next steps during our New Chapter Info Session! Our July session will take place on July 7 at 6:00 p.m. ET. We look forward to seeing you there!\nRegister Here
URL:http://rareaction.org/event/students-for-rare-new-chapter-info-session-july/
ATTACH;FMTTYPE=image/png:http://rareaction.org/wp-content/uploads/2026/06/Students-for-Rare-Info-Session-Social-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260708T120000
DTEND;TZID=UTC:20260708T130000
DTSTAMP:20260812T070835
CREATED:20251209T234924Z
LAST-MODIFIED:20260730T001648Z
UID:10000013-1783512000-1783515600@rareaction.org
SUMMARY:Illinois Rare Disease Commission Meeting
DESCRIPTION:Commission Meetings \nThe Illinois Rare Disease Commission meets monthly\, and you can find additional meeting information below. \nMeetings
URL:http://rareaction.org/event/illinois-rare-disease-commission-meeting-times/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260710T090000
DTEND;TZID=UTC:20260710T100000
DTSTAMP:20260812T070835
CREATED:20251210T011133Z
LAST-MODIFIED:20260730T001446Z
UID:10000023-1783674000-1783677600@rareaction.org
SUMMARY:South Carolina Rare Disease Advisory Council (RDAC) Meeting
DESCRIPTION:Advisory Council Meetings \nYou can find the South Carolina RDAC meeting times linked below. Contact SCRDAC@musc.edu for more info. \nMeetings
URL:http://rareaction.org/event/south-carolina-rare-disease-advisory-council-rdac-meeting-times/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260714T160000
DTEND;TZID=UTC:20260714T170000
DTSTAMP:20260812T070835
CREATED:20251210T001051Z
LAST-MODIFIED:20260730T001343Z
UID:10000015-1784044800-1784048400@rareaction.org
SUMMARY:Maryland Rare Disease Advisory Council (RDAC) Meeting
DESCRIPTION:Advisory Council Meetings \nThe Maryland Rare Disease Advisory Council meets monthly on the second Tuesday of the month from 4-5PM. You can find additional meeting time information linked below. \nMeetings
URL:http://rareaction.org/event/maryland-rare-disease-advisory-council-rdac-meeting-times/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260715T120000
DTEND;TZID=UTC:20260715T130000
DTSTAMP:20260812T070835
CREATED:20251209T234451Z
LAST-MODIFIED:20260730T001158Z
UID:10000011-1784116800-1784120400@rareaction.org
SUMMARY:Georgia Rare Disease Advisory Council (RDAC) Meeting
DESCRIPTION:Advisory Council Meetings \nThe Georgia RDAC meets virtually\, and you can find their meeting times linked below. \nMeetings
URL:http://rareaction.org/event/georgia-rare-disease-advisory-council-rdac-meeting-times/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260719T090000
DTEND;TZID=UTC:20260719T120000
DTSTAMP:20260812T070835
CREATED:20260604T002523Z
LAST-MODIFIED:20260730T001035Z
UID:10000058-1784451600-1784462400@rareaction.org
SUMMARY:Hoops for Hunter Syndrome
DESCRIPTION:Shoot Hoops. Raise Hope. Change Lives. \nJoin Project Alive on July 19 for Hoops for Hunter Syndrome\, a fun-filled basketball event benefiting Project Alive and the Hunter syndrome community! \nDate: July 19\, 2026\nTime: 9:00 AM – 12:00 PM\nLocation: Ranch Sports Facility \nThis special event was inspired by a family’s love for basketball and their determination to create a brighter future for those living with Hunter syndrome. \nWhat you can expect: \n\nBasketball Tournament\nFamily-Friendly Fun\nSupport a Meaningful Cause\nMake a Difference for Rare Disease Families\n\nRegister Here
URL:http://rareaction.org/event/hoops-for-hunter-syndrome/
LOCATION:Ranch Sports Facility\, 16067 Euclid Ave\, Chino\, CA\, 91708\, United States
ATTACH;FMTTYPE=image/png:http://rareaction.org/wp-content/uploads/2026/06/Hoops-for-Hunters-Fundraiser-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260722T100000
DTEND;TZID=UTC:20260722T120000
DTSTAMP:20260812T070835
CREATED:20251210T002211Z
LAST-MODIFIED:20260730T000913Z
UID:10000017-1784714400-1784721600@rareaction.org
SUMMARY:Michigan Rare Disease Advisory Council (RDAC) Meeting
DESCRIPTION:Advisory Council Meetings \nThe Michigan Rare Disease Advisory Council meets quarterly and meetings are open to the public. Please email MDHHS-RareDiseases@michigan.gov for more information.  \nYou can find the upcoming meeting times linked below. \nMeetings
URL:http://rareaction.org/event/michigan-rare-disease-advisory-council-rdac-meeting-times/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260722T130000
DTEND;TZID=UTC:20260722T140000
DTSTAMP:20260812T070836
CREATED:20260630T190201Z
LAST-MODIFIED:20260730T000813Z
UID:10000059-1784725200-1784728800@rareaction.org
SUMMARY:Webinar: State Legislative Session Recap
DESCRIPTION:As state legislative sessions wind down\, join NORD’s Rare Action Network (RAN) for an end of session policy & advocacy wrap up. During this webinar\, we’ll discuss bills we tracked across the country\, celebrate our hard-fought advocacy wins\, and identify key opportunities for growth and improvement. We’ll also discuss potential areas of focus as we head towards 2027! \nRegister Here
URL:http://rareaction.org/event/webinar-state-legislative-session-recap/
ATTACH;FMTTYPE=image/png:http://rareaction.org/wp-content/uploads/2026/06/July-RAN-Webinar-State-Legislative-Session-Recap.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260723T090000
DTEND;TZID=UTC:20260723T110000
DTSTAMP:20260812T070836
CREATED:20251210T001351Z
LAST-MODIFIED:20260730T000607Z
UID:10000016-1784797200-1784804400@rareaction.org
SUMMARY:Massachusetts Rare Disease Advisory Council (RDAC) Meeting
DESCRIPTION:Advisory Council Meetings \nThe Massachusetts RDAC meets virtually\, and you can find additional meeting information linked below. \nMeetings
URL:http://rareaction.org/event/massachusetts-rare-disease-advisory-council-rdac-meeting-times/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260730T150000
DTEND;TZID=America/New_York:20260730T160000
DTSTAMP:20260812T070836
CREATED:20260709T174508Z
LAST-MODIFIED:20260730T000411Z
UID:10000062-1785423600-1785427200@rareaction.org
SUMMARY:Webinar: Overcoming Insurance Barriers
DESCRIPTION:If you are impacted by a rare disease\, you are likely spending countless hours navigating health insurance. In this session\, we will discuss common insurance barriers faced by patients and caregivers living with a rare disease\, and tips to overcome them. This panel incorporates several unique perspectives for every step in your journey that you won’t want to miss! \nRegister
URL:http://rareaction.org/event/living-rare-living-stronger-summer-webinar-series/
ATTACH;FMTTYPE=image/png:http://rareaction.org/wp-content/uploads/2026/07/LRLS-Virtual.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260730T160000
DTEND;TZID=UTC:20260730T170000
DTSTAMP:20260812T070836
CREATED:20260313T221848Z
LAST-MODIFIED:20260730T185941Z
UID:10000038-1785427200-1785430800@rareaction.org
SUMMARY:NORD Volunteer Information Session
DESCRIPTION:In this session\, NORD staff will provide an overview of NORD’s volunteer programming. This is designed to give you a clear understanding of our mission and the various ways you can make an impact. We will conclude with an open-floor discussion\, providing a space for you to ask questions and determine the next steps for your volunteer journey. \nRegister Here
URL:http://rareaction.org/event/nord-volunteer-meeting/
LOCATION:Zoom Meeting\, Online
ATTACH;FMTTYPE=image/png:http://rareaction.org/wp-content/uploads/2026/03/Volunteer-Meeting-Social-Media-Graphic.png
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