The Tennessee RDAC meetings are scheduled on the fourth Wednesday of every other month from 8:00 am to 9:30 am CST. If you are interested in joining the meeting, please email [email protected] for instructions on how to attend and a link to the virtual meeting. Meetings
Advisory Council Meetings The Minnesota RDAC meets virtually, and you can find additional meeting information linked below. Meetings How to Make a Public Comments during Full Council Meetings The Minnesota […]
Advisory Council Meetings The Council holds public meetings on the first Friday of each month from January through June, from 10:00 a.m. to 11:00 a.m. Meetings typically take place at […]
Building strong relationships with lawmakers is one of the most effective ways to advance rare disease policy and ensure the needs of our community are heard. The time between legislative […]
Are you a collegiate student interested in starting a NORD Students for Rare chapter on campus? Come and learn more about the program and next steps during our New Chapter […]
Shoot Hoops. Raise Hope. Change Lives. Join Project Alive on July 19 for Hoops for Hunter Syndrome, a fun-filled basketball event benefiting Project Alive and the Hunter syndrome community! Date: […]
