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X-ORIGINAL-URL:http://rareaction.org
X-WR-CALDESC:Events for - Rare Action Network®
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DTSTART;TZID=UTC:20260814T150000
DTEND;TZID=UTC:20260814T170000
DTSTAMP:20260812T061537
CREATED:20251209T235413Z
LAST-MODIFIED:20260729T235207Z
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SUMMARY:Indiana Rare Disease Advisory Council (RDAC) Meeting
DESCRIPTION:Advisory Council Meetings \nThe Indiana RDAC hosts virtual meetings\, and additional meeting information can be found below. \nMeetings
URL:http://rareaction.org/event/indiana-rare-disease-advisory-council-rdac-meeting-times/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260819T010000
DTEND;TZID=UTC:20260819T140000
DTSTAMP:20260812T061537
CREATED:20260728T212618Z
LAST-MODIFIED:20260729T235117Z
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SUMMARY:Webinar: Understanding Medical Nutrition and Insurance Coverage Challenges
DESCRIPTION:For many rare disease patients\, medical nutrition products are life-sustaining medicine\, yet insurance coverage for medical nutrition is inconsistent and varies widely based on a patient’s diagnosis\, insurance plan type\, and state of residence. During this webinar\, we’ll teach you about the meaning of “medically necessary nutrition products”\, how medical nutrition coverage challenges impact the rare disease community\, and ways you can advocate for improved medical nutrition coverage in your state and at the federal level. \nRegister
URL:http://rareaction.org/event/webinar-understanding-medical-nutrition-and-insurance-coverage-challenges/
ATTACH;FMTTYPE=image/png:http://rareaction.org/wp-content/uploads/2026/07/8-19-26-RAN-Webinar.png
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BEGIN:VEVENT
DTSTART;TZID=UTC:20260827T150000
DTEND;TZID=UTC:20260827T160000
DTSTAMP:20260812T061537
CREATED:20260709T174832Z
LAST-MODIFIED:20260729T235053Z
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SUMMARY:Webinar: Innovative Approaches to Improving Your Rare Disease Care
DESCRIPTION:In an era of scientific and technological advances\, rare disease care is changing every day. Join us for a robust panel discussion diving into different approaches to navigate and improve your rare care throughout each step of your journey. \nRegister
URL:http://rareaction.org/event/living-rare-living-stronger-summer-webinar-series-2/
ATTACH;FMTTYPE=image/png:http://rareaction.org/wp-content/uploads/2026/07/LRLS-Virtual.png
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BEGIN:VEVENT
DTSTART;TZID=UTC:20260915T110000
DTEND;TZID=UTC:20260915T120000
DTSTAMP:20260812T061537
CREATED:20251209T220154Z
LAST-MODIFIED:20260729T235020Z
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SUMMARY:Delaware Rare Disease Advisory Council (RDAC) Meeting
DESCRIPTION:Advisory Council Meetings \nThe Delaware Rare Disease Advisory Council meets online\, and those meetings are open to the public. If you’d like to attend\, please reference the Public Meeting Calendar for a schedule of upcoming meetings. \nPublic Meeting Calendar \n 
URL:http://rareaction.org/event/delaware-rare-disease-advisory-council-rdac-meeting-times/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20261008T103000
DTEND;TZID=UTC:20261008T140000
DTSTAMP:20260812T061537
CREATED:20251210T003910Z
LAST-MODIFIED:20260729T234942Z
UID:10000020-1791455400-1791468000@rareaction.org
SUMMARY:Missouri Advisory Council on Rare Diseases and Personalized Medicine Meeting
DESCRIPTION:Advisory Council Meetings \nThe Missouri RDAC meets virtually\, and you can find additional meeting information below. \nMeetings \nRegister for Public Comment: \nAny interested party shall be granted the opportunity for clinically relevant public comment for up to three (3) minutes per medication under review by the RDAC. The responsibility of scheduling the presentation shall rest with the interested party\, and registration must be completed prior to the scheduled meeting. Interested parties representing a manufacturer shall be granted three (3) minutes in the aggregate per medication under review by the RDAC. \nRegister 
URL:http://rareaction.org/event/missouri-advisory-council-on-rare-diseases-and-personalized-medicine-rdac-meeting-times/
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