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X-WR-CALNAME:- Rare Action Network®
X-ORIGINAL-URL:http://rareaction.org
X-WR-CALDESC:Events for - Rare Action Network®
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BEGIN:VEVENT
DTSTART;TZID=UTC:20260819T010000
DTEND;TZID=UTC:20260819T140000
DTSTAMP:20260813T100024
CREATED:20260728T212618Z
LAST-MODIFIED:20260729T235117Z
UID:10000064-1787101200-1787148000@rareaction.org
SUMMARY:Webinar: Understanding Medical Nutrition and Insurance Coverage Challenges
DESCRIPTION:For many rare disease patients\, medical nutrition products are life-sustaining medicine\, yet insurance coverage for medical nutrition is inconsistent and varies widely based on a patient’s diagnosis\, insurance plan type\, and state of residence. During this webinar\, we’ll teach you about the meaning of “medically necessary nutrition products”\, how medical nutrition coverage challenges impact the rare disease community\, and ways you can advocate for improved medical nutrition coverage in your state and at the federal level. \nRegister
URL:http://rareaction.org/event/webinar-understanding-medical-nutrition-and-insurance-coverage-challenges/
ATTACH;FMTTYPE=image/png:http://rareaction.org/wp-content/uploads/2026/07/8-19-26-RAN-Webinar.png
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BEGIN:VEVENT
DTSTART;TZID=UTC:20260819T120000
DTEND;TZID=UTC:20260819T130000
DTSTAMP:20260813T100024
CREATED:20251209T234451Z
LAST-MODIFIED:20260812T194651Z
UID:10000011-1787140800-1787144400@rareaction.org
SUMMARY:Georgia Rare Disease Advisory Council (RDAC) Meeting
DESCRIPTION:Advisory Council Meetings \nThe Georgia RDAC meets virtually\, and you can find their meeting times linked below. \nMeetings
URL:http://rareaction.org/event/georgia-rare-disease-advisory-council-rdac-meeting-times/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260827T150000
DTEND;TZID=UTC:20260827T160000
DTSTAMP:20260813T100024
CREATED:20260709T174832Z
LAST-MODIFIED:20260729T235053Z
UID:10000063-1787842800-1787846400@rareaction.org
SUMMARY:Webinar: Innovative Approaches to Improving Your Rare Disease Care
DESCRIPTION:In an era of scientific and technological advances\, rare disease care is changing every day. Join us for a robust panel discussion diving into different approaches to navigate and improve your rare care throughout each step of your journey. \nRegister
URL:http://rareaction.org/event/living-rare-living-stronger-summer-webinar-series-2/
ATTACH;FMTTYPE=image/png:http://rareaction.org/wp-content/uploads/2026/07/LRLS-Virtual.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260827T160000
DTEND;TZID=UTC:20260827T170000
DTSTAMP:20260813T100024
CREATED:20260313T221848Z
LAST-MODIFIED:20260812T171538Z
UID:10000038-1787846400-1787850000@rareaction.org
SUMMARY:NORD Volunteer Information Session
DESCRIPTION:In this session\, NORD staff will provide an overview of NORD’s volunteer programming. This is designed to give you a clear understanding of our mission and the various ways you can make an impact. We will conclude with an open-floor discussion\, providing a space for you to ask questions and determine the next steps for your volunteer journey. \nRegister Here
URL:http://rareaction.org/event/nord-volunteer-meeting/
LOCATION:Zoom Meeting\, Online
ATTACH;FMTTYPE=image/png:http://rareaction.org/wp-content/uploads/2026/03/Volunteer-Meeting-Social-Media-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260828T090000
DTEND;TZID=UTC:20260828T100000
DTSTAMP:20260813T100024
CREATED:20251210T011133Z
LAST-MODIFIED:20260812T194327Z
UID:10000023-1787907600-1787911200@rareaction.org
SUMMARY:South Carolina Rare Disease Advisory Council (RDAC) Meeting
DESCRIPTION:Advisory Council Meetings \nYou can find the South Carolina RDAC meeting times linked below. Contact SCRDAC@musc.edu for more info. \nMeetings
URL:http://rareaction.org/event/south-carolina-rare-disease-advisory-council-rdac-meeting-times/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260903T120000
DTEND;TZID=America/New_York:20260903T130000
DTSTAMP:20260813T100024
CREATED:20260812T172931Z
LAST-MODIFIED:20260812T172931Z
UID:10000065-1788436800-1788440400@rareaction.org
SUMMARY:Webinar: Recognizing Rare Cancer Day Through Action
DESCRIPTION:Rare Cancer Day is an annual celebration devoted to raising awareness about rare cancers and the challenges people living with them face. This year\, Rare Cancer Day is being recognized on September 23. For the rare cancer community\, timely access to innovative diagnostic and comprehensive care can mean the difference between life and death. During this webinar\, we’ll discuss NORD’s state\, federal\, and regulatory efforts impacting the rare cancer community. We’ll also share how you can get involved and make an impact on Rare Cancer Day. \nRegister
URL:http://rareaction.org/event/webinar-recognizing-rare-cancer-day-through-action/
ATTACH;FMTTYPE=image/png:http://rareaction.org/wp-content/uploads/2026/08/Sept-2026-RAN-Webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260914T090000
DTEND;TZID=UTC:20260914T110000
DTSTAMP:20260813T100024
CREATED:20251209T214039Z
LAST-MODIFIED:20260812T200708Z
UID:10000007-1789376400-1789383600@rareaction.org
SUMMARY:Colorado Rare Disease Advisory Council (RDAC) Meeting
DESCRIPTION:You can find the Colorado RDAC meeting times linked below. \nMeetings
URL:http://rareaction.org/event/colorado-rdac-meeting-times/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260915T110000
DTEND;TZID=UTC:20260915T120000
DTSTAMP:20260813T100024
CREATED:20251209T220154Z
LAST-MODIFIED:20260729T235020Z
UID:10000009-1789470000-1789473600@rareaction.org
SUMMARY:Delaware Rare Disease Advisory Council (RDAC) Meeting
DESCRIPTION:Advisory Council Meetings \nThe Delaware Rare Disease Advisory Council meets online\, and those meetings are open to the public. If you’d like to attend\, please reference the Public Meeting Calendar for a schedule of upcoming meetings. \nPublic Meeting Calendar \n 
URL:http://rareaction.org/event/delaware-rare-disease-advisory-council-rdac-meeting-times/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260917T090000
DTEND;TZID=UTC:20260917T110000
DTSTAMP:20260813T100024
CREATED:20251210T001351Z
LAST-MODIFIED:20260812T195624Z
UID:10000016-1789635600-1789642800@rareaction.org
SUMMARY:Massachusetts Rare Disease Advisory Council (RDAC) Meeting
DESCRIPTION:Advisory Council Meetings \nThe Massachusetts RDAC meets virtually\, and you can find additional meeting information linked below. \nMeetings
URL:http://rareaction.org/event/massachusetts-rare-disease-advisory-council-rdac-meeting-times/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20261002T093000
DTEND;TZID=UTC:20261002T103000
DTSTAMP:20260813T100024
CREATED:20251210T004446Z
LAST-MODIFIED:20260812T200541Z
UID:10000037-1790933400-1790937000@rareaction.org
SUMMARY:Nevada Rare Disease Advisory Council (RDAC) Meeting
DESCRIPTION:The Nevada RDAC meets on the First Friday of the month on even numbered months at 9:30 AM PST. You can find the Nevada RDAC meeting times linked below. Please click on the Meeting Information for the current year to get further details. \nMeetings \n 
URL:http://rareaction.org/event/nevada-rare-disease-advisory-council-rdac-meeting-times/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20261007T100000
DTEND;TZID=UTC:20261007T120000
DTSTAMP:20260813T100024
CREATED:20251210T002211Z
LAST-MODIFIED:20260812T195447Z
UID:10000017-1791367200-1791374400@rareaction.org
SUMMARY:Michigan Rare Disease Advisory Council (RDAC) Meeting
DESCRIPTION:Advisory Council Meetings \nThe Michigan Rare Disease Advisory Council meets quarterly and meetings are open to the public. Please email MDHHS-RareDiseases@michigan.gov for more information.  \nYou can find the upcoming meeting times linked below. \nMeetings
URL:http://rareaction.org/event/michigan-rare-disease-advisory-council-rdac-meeting-times/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20261008T103000
DTEND;TZID=UTC:20261008T140000
DTSTAMP:20260813T100024
CREATED:20251210T003910Z
LAST-MODIFIED:20260729T234942Z
UID:10000020-1791455400-1791468000@rareaction.org
SUMMARY:Missouri Advisory Council on Rare Diseases and Personalized Medicine Meeting
DESCRIPTION:Advisory Council Meetings \nThe Missouri RDAC meets virtually\, and you can find additional meeting information below. \nMeetings \nRegister for Public Comment: \nAny interested party shall be granted the opportunity for clinically relevant public comment for up to three (3) minutes per medication under review by the RDAC. The responsibility of scheduling the presentation shall rest with the interested party\, and registration must be completed prior to the scheduled meeting. Interested parties representing a manufacturer shall be granted three (3) minutes in the aggregate per medication under review by the RDAC. \nRegister 
URL:http://rareaction.org/event/missouri-advisory-council-on-rare-diseases-and-personalized-medicine-rdac-meeting-times/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20261117T100000
DTEND;TZID=UTC:20261117T120000
DTSTAMP:20260813T100024
CREATED:20251210T013000Z
LAST-MODIFIED:20260812T200144Z
UID:10000025-1794909600-1794916800@rareaction.org
SUMMARY:Virginia Rare Disease Council Meeting
DESCRIPTION:Advisory Council Meetings \nThe Virginia Rare Disease Council meets quarterly. \nYou can search for Virginia Rare Disease Council meetings on the Virginia Regulatory Town Hall website. To do so\, simply click “Regulatory Board” and select “State Board of Health”. Then click “Scheduled For” and select “All Past and Future”. Finally\, under “Meeting Title Partial Match” type “Rare Disease” in the search box to populate all relevant meetings. \nMeetings \n 
URL:http://rareaction.org/event/virginia-rare-disease-council-meeting-times/
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