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PRODID:-//- Rare Action Network® - ECPv6.15.17.1//NONSGML v1.0//EN
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X-WR-CALNAME:- Rare Action Network®
X-ORIGINAL-URL:http://rareaction.org
X-WR-CALDESC:Events for - Rare Action Network®
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DTSTART:20250101T000000
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BEGIN:VEVENT
DTSTART;TZID=UTC:20260805T100000
DTEND;TZID=UTC:20260805T120000
DTSTAMP:20260812T104801
CREATED:20251210T013000Z
LAST-MODIFIED:20260729T235746Z
UID:10000025-1785924000-1785931200@rareaction.org
SUMMARY:Virginia Rare Disease Council Meeting
DESCRIPTION:Advisory Council Meetings \nThe Virginia Rare Disease Council meets quarterly. \nYou can search for Virginia Rare Disease Council meetings on the Virginia Regulatory Town Hall website. To do so\, simply select “State Board of Health” as the “Regulatory Board” and “All Past and Future” under “Scheduled For”. Finally\, enter “Rare Disease” in the “Meeting Title Partial Match” search box to populate all relevant meetings. \nMeetings \n 
URL:http://rareaction.org/event/virginia-rare-disease-council-meeting-times/
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BEGIN:VEVENT
DTSTART;TZID=UTC:20260807T093000
DTEND;TZID=UTC:20260807T103000
DTSTAMP:20260812T104801
CREATED:20251210T004446Z
LAST-MODIFIED:20260729T235613Z
UID:10000037-1786095000-1786098600@rareaction.org
SUMMARY:Nevada Rare Disease Advisory Council (RDAC) Meeting
DESCRIPTION:Advisory Council Meetings \nThe Nevada RDAC meets on the First Friday of the month on even numbered months at 9:30 AM PST. You can find the Nevada RDAC meeting times linked below. Please click on the Meeting Information for the current year to get further details. \nMeetings \n 
URL:http://rareaction.org/event/nevada-rare-disease-advisory-council-rdac-meeting-times/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260810T090000
DTEND;TZID=UTC:20260810T110000
DTSTAMP:20260812T104801
CREATED:20251209T214039Z
LAST-MODIFIED:20260806T204722Z
UID:10000007-1786352400-1786359600@rareaction.org
SUMMARY:Colorado Rare Disease Advisory Council (RDAC) Meeting
DESCRIPTION:You can find the Colorado RDAC meeting times linked below. \nMeetings
URL:http://rareaction.org/event/colorado-rdac-meeting-times/
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BEGIN:VEVENT
DTSTART;TZID=UTC:20260810T120000
DTEND;TZID=UTC:20260810T130000
DTSTAMP:20260812T104801
CREATED:20260630T195527Z
LAST-MODIFIED:20260729T235308Z
UID:10000061-1786363200-1786366800@rareaction.org
SUMMARY:Students for Rare New Chapter Info Session - August
DESCRIPTION:Are you a collegiate student interested in starting a NORD Students for Rare chapter on campus? Come and learn more about the program and next steps during our New Chapter Info Session! Our August session will take place on August 10 at 12:00 p.m. ET. We look forward to seeing you there!\nRegister Here
URL:http://rareaction.org/event/students-for-rare-new-chapter-info-session-august/
ATTACH;FMTTYPE=image/png:http://rareaction.org/wp-content/uploads/2026/06/Students-for-Rare-Info-Session-Social-Graphic-1.png
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BEGIN:VEVENT
DTSTART;TZID=UTC:20260814T150000
DTEND;TZID=UTC:20260814T170000
DTSTAMP:20260812T104801
CREATED:20251209T235413Z
LAST-MODIFIED:20260729T235207Z
UID:10000012-1786719600-1786726800@rareaction.org
SUMMARY:Indiana Rare Disease Advisory Council (RDAC) Meeting
DESCRIPTION:Advisory Council Meetings \nThe Indiana RDAC hosts virtual meetings\, and additional meeting information can be found below. \nMeetings
URL:http://rareaction.org/event/indiana-rare-disease-advisory-council-rdac-meeting-times/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260819T010000
DTEND;TZID=UTC:20260819T140000
DTSTAMP:20260812T104801
CREATED:20260728T212618Z
LAST-MODIFIED:20260729T235117Z
UID:10000064-1787101200-1787148000@rareaction.org
SUMMARY:Webinar: Understanding Medical Nutrition and Insurance Coverage Challenges
DESCRIPTION:For many rare disease patients\, medical nutrition products are life-sustaining medicine\, yet insurance coverage for medical nutrition is inconsistent and varies widely based on a patient’s diagnosis\, insurance plan type\, and state of residence. During this webinar\, we’ll teach you about the meaning of “medically necessary nutrition products”\, how medical nutrition coverage challenges impact the rare disease community\, and ways you can advocate for improved medical nutrition coverage in your state and at the federal level. \nRegister
URL:http://rareaction.org/event/webinar-understanding-medical-nutrition-and-insurance-coverage-challenges/
ATTACH;FMTTYPE=image/png:http://rareaction.org/wp-content/uploads/2026/07/8-19-26-RAN-Webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260827T150000
DTEND;TZID=UTC:20260827T160000
DTSTAMP:20260812T104801
CREATED:20260709T174832Z
LAST-MODIFIED:20260729T235053Z
UID:10000063-1787842800-1787846400@rareaction.org
SUMMARY:Webinar: Innovative Approaches to Improving Your Rare Disease Care
DESCRIPTION:In an era of scientific and technological advances\, rare disease care is changing every day. Join us for a robust panel discussion diving into different approaches to navigate and improve your rare care throughout each step of your journey. \nRegister
URL:http://rareaction.org/event/living-rare-living-stronger-summer-webinar-series-2/
ATTACH;FMTTYPE=image/png:http://rareaction.org/wp-content/uploads/2026/07/LRLS-Virtual.png
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BEGIN:VEVENT
DTSTART;TZID=UTC:20260915T110000
DTEND;TZID=UTC:20260915T120000
DTSTAMP:20260812T104801
CREATED:20251209T220154Z
LAST-MODIFIED:20260729T235020Z
UID:10000009-1789470000-1789473600@rareaction.org
SUMMARY:Delaware Rare Disease Advisory Council (RDAC) Meeting
DESCRIPTION:Advisory Council Meetings \nThe Delaware Rare Disease Advisory Council meets online\, and those meetings are open to the public. If you’d like to attend\, please reference the Public Meeting Calendar for a schedule of upcoming meetings. \nPublic Meeting Calendar \n 
URL:http://rareaction.org/event/delaware-rare-disease-advisory-council-rdac-meeting-times/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20261008T103000
DTEND;TZID=UTC:20261008T140000
DTSTAMP:20260812T104801
CREATED:20251210T003910Z
LAST-MODIFIED:20260729T234942Z
UID:10000020-1791455400-1791468000@rareaction.org
SUMMARY:Missouri Advisory Council on Rare Diseases and Personalized Medicine Meeting
DESCRIPTION:Advisory Council Meetings \nThe Missouri RDAC meets virtually\, and you can find additional meeting information below. \nMeetings \nRegister for Public Comment: \nAny interested party shall be granted the opportunity for clinically relevant public comment for up to three (3) minutes per medication under review by the RDAC. The responsibility of scheduling the presentation shall rest with the interested party\, and registration must be completed prior to the scheduled meeting. Interested parties representing a manufacturer shall be granted three (3) minutes in the aggregate per medication under review by the RDAC. \nRegister 
URL:http://rareaction.org/event/missouri-advisory-council-on-rare-diseases-and-personalized-medicine-rdac-meeting-times/
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