BEGIN:VCALENDAR
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PRODID:-//- Rare Action Network® - ECPv6.15.17.1//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:- Rare Action Network®
X-ORIGINAL-URL:http://rareaction.org
X-WR-CALDESC:Events for - Rare Action Network®
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:UTC
BEGIN:STANDARD
TZOFFSETFROM:+0000
TZOFFSETTO:+0000
TZNAME:UTC
DTSTART:20250101T000000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=UTC:20260210T110000
DTEND;TZID=UTC:20260210T120000
DTSTAMP:20260404T114725
CREATED:20251209T170154Z
LAST-MODIFIED:20260311T183103Z
UID:10000009-1770721200-1770724800@rareaction.org
SUMMARY:Delaware Rare Disease Advisory Council (RDAC) Meeting
DESCRIPTION:Advisory Council Meetings \nThe Delaware Rare Disease Advisory Council meets online\, and those meetings are open to the public. If you’d like to attend\, please reference the Public Meeting Calendar for a schedule of upcoming meetings. \nPublic Meeting Calendar \n 
URL:http://rareaction.org/event/delaware-rare-disease-advisory-council-rdac-meeting-times/
LOCATION:VT
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260218T100000
DTEND;TZID=UTC:20260218T133000
DTSTAMP:20260404T114725
CREATED:20251209T203000Z
LAST-MODIFIED:20260311T183813Z
UID:10000025-1771408800-1771421400@rareaction.org
SUMMARY:Virginia Rare Disease Council Meeting
DESCRIPTION:Advisory Council Meetings \nThe Virginia Rare Disease Council meets quarterly. \nYou can search for Virginia Rare Disease Council meetings on the Virginia Regulatory Town Hall website. To do so\, simply select “State Board of Health” as the “Regulatory Board” and “All Past and Future” under “Scheduled For”. Finally\, enter “Rare Disease” in the “Meeting Title Partial Match” search box to populate all relevant meetings. \nMeetings \n 
URL:http://rareaction.org/event/virginia-rare-disease-council-meeting-times/
LOCATION:VT
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260318T120000
DTEND;TZID=UTC:20260318T130000
DTSTAMP:20260404T114725
CREATED:20251209T184451Z
LAST-MODIFIED:20260311T182442Z
UID:10000011-1773835200-1773838800@rareaction.org
SUMMARY:Georgia Rare Disease Advisory Council (RDAC) Meeting
DESCRIPTION:Advisory Council Meetings \nThe Georgia RDAC meets virtually\, and you can find their meeting times linked below. \nMeetings
URL:http://rareaction.org/event/georgia-rare-disease-advisory-council-rdac-meeting-times/
LOCATION:VT
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260323T183000
DTEND;TZID=UTC:20260323T193000
DTSTAMP:20260404T114725
CREATED:20260316T203648Z
LAST-MODIFIED:20260316T203831Z
UID:10000051-1774290600-1774294200@rareaction.org
SUMMARY:New York RDAC Coalition Meeting
DESCRIPTION:During this session\, NORD staff will present: \n\nLegislative Updates: A deep dive into S1287-B/A1296-B\, legislation that would codify a Rare Disease Advisory Council (RDAC) into law in New York.\nAdvocacy Resources: Key details regarding our latest Action Alerts and upcoming webinars.\nStrategic Next Steps: Clear\, actionable items for grassroots advocates to move the needle.\n\nRegister Here
URL:http://rareaction.org/event/new-york-rdac-coalition-meeting/
LOCATION:VT
ATTACH;FMTTYPE=image/png:http://rareaction.org/wp-content/uploads/2026/03/RDAC-Coalition-Meeting-Graphic-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260326T160000
DTEND;TZID=UTC:20260326T170000
DTSTAMP:20260404T114725
CREATED:20260313T181848Z
LAST-MODIFIED:20260325T014648Z
UID:10000038-1774540800-1774544400@rareaction.org
SUMMARY:NORD Volunteer Meeting
DESCRIPTION:Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of every month at 4pm ET. \nRegister Here
URL:http://rareaction.org/event/nord-volunteer-meeting/2026-03-26/
LOCATION:Zoom Meeting\, Online
ATTACH;FMTTYPE=image/png:http://rareaction.org/wp-content/uploads/2026/03/Volunteer-Meeting-Social-Media-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260408T080000
DTEND;TZID=UTC:20260408T100000
DTSTAMP:20260404T114725
CREATED:20260318T192313Z
LAST-MODIFIED:20260331T205448Z
UID:10000054-1775635200-1775642400@rareaction.org
SUMMARY:Vermont Advocacy Day
DESCRIPTION:Join NORD’s Vermont Rare Action Network (RAN) for an advocacy event in Montpelier at the State House on Wednesday\, April 8\, 2026. This is your chance to meet  face-to-face with your legislators and advocate for H.46 – the bill to create a Rare Disease Advisory Council (RDAC) in Vermont. During this event\, we will have a table display in the café\, and we’ll be providing information to lawmakers on rare diseases and our RDAC bill. Vermont advocates are invited to join us to help spread awareness! \nEvent details:  \nDate: Wednesday\, April 8\, 2026\nTime: 8:00 a.m. to 10:00 a.m.\nLocation: Vermont State House Cafeteria\, 115 State St.\, Montpelier\, VT 05602 \nRegister Here
URL:http://rareaction.org/event/vermont-advocacy-day-2/
LOCATION:Vermont State House\, 115 State Street\, Montpelier\, VT\, 05602\, United States
ATTACH;FMTTYPE=image/jpeg:http://rareaction.org/wp-content/uploads/2026/03/VT.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260423T160000
DTEND;TZID=UTC:20260423T170000
DTSTAMP:20260404T114725
CREATED:20260313T181848Z
LAST-MODIFIED:20260325T014648Z
UID:10000039-1776960000-1776963600@rareaction.org
SUMMARY:NORD Volunteer Meeting
DESCRIPTION:Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of every month at 4pm ET. \nRegister Here
URL:http://rareaction.org/event/nord-volunteer-meeting/2026-04-23/
LOCATION:Zoom Meeting\, Online
ATTACH;FMTTYPE=image/png:http://rareaction.org/wp-content/uploads/2026/03/Volunteer-Meeting-Social-Media-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260508T100000
DTEND;TZID=UTC:20260508T140000
DTSTAMP:20260404T114725
CREATED:20260316T202339Z
LAST-MODIFIED:20260325T014131Z
UID:10000049-1778234400-1778248800@rareaction.org
SUMMARY:Living Rare\, Living Stronger Arizona
DESCRIPTION:The National Organization for Rare Disorders (NORD®) invites you to join us in Phoenix\, Arizona for a day of education and connection. Our Living Rare Forum is designed to help you navigate your life with a rare disease or as a rare caregiver. Each forum features expert speakers\, dynamic educational sessions\, and meaningful community-building opportunities. \nRegister Here \nEvent details: \nDate: Friday\, May 8\, 2026\nTime: 10:00 a.m. to 2:00 p.m.\nLocation: Grand Canyon University\, Education Center Building 71\n2600 W. Camelback Road\nPhoenix\, AZ 85017
URL:http://rareaction.org/event/make-connections-build-community-at-living-rare-living-stronger-arizona/
LOCATION:Grand Canyon University\, 2600 W. Camelback Road\, Phoenix\, AZ\, 85017\, United States
ATTACH;FMTTYPE=image/png:http://rareaction.org/wp-content/uploads/2026/03/Screenshot-2026-03-12-111954.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260515T090000
DTEND;TZID=UTC:20260515T130000
DTSTAMP:20260404T114725
CREATED:20260316T202815Z
LAST-MODIFIED:20260325T014227Z
UID:10000050-1778835600-1778850000@rareaction.org
SUMMARY:Living Rare\, Living Stronger Colorado
DESCRIPTION:The National Organization for Rare Disorders (NORD®) invites you to join us in Denver\, Colorado for a day of education and connection. Our Living Rare Forum is designed to help you navigate your life with a rare disease or as a rare caregiver. Each forum features expert speakers\, dynamic educational sessions\, and meaningful community-building opportunities. \nRegister Here \nEvent details: \nDate: Friday\, May 15\, 2026\nTime: 9:00 a.m. to 1:00 p.m.\nLocation: Auraria Campus\, Tivoli – Turnhalle\n900 Auraria Parkway\, Denver\, CO 80204
URL:http://rareaction.org/event/make-connections-build-community-at-living-rare-living-stronger-colorado/
LOCATION:Auraria Campus\, 900 Auraria Parkway\, Denver\, CO\, 80204\, United States
ATTACH;FMTTYPE=image/png:http://rareaction.org/wp-content/uploads/2026/03/Screenshot-2026-03-12-111954.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260518T120000
DTEND;TZID=UTC:20260518T130000
DTSTAMP:20260404T114725
CREATED:20251209T195511Z
LAST-MODIFIED:20260311T163225Z
UID:10000022-1779105600-1779109200@rareaction.org
SUMMARY:New Hampshire Rare Disease Advisory Council (RDAC) Meeting
DESCRIPTION:Advisory Council Meetings \nMeetings are open to the public and are usually held at 29 Hazen Drive\, Concord\, NH\, but the location is subject to change. \nMeetings occur on the 3rd Monday in January\, March\, May\, July\, September\, and November\, from 12:00-1:00pm. \nFor information about attending a meeting\, including confirmation the location\, please contract Bureau of Family Health and Nutrition\, 603-271-4517 \nYou can find the published New Hampshire RDAC meeting times linked below. \nMeetings
URL:http://rareaction.org/event/new-hampshire-rare-disease-advisory-council-rdac-meeting-times/
LOCATION:New Hamp Place\, NH\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260528T160000
DTEND;TZID=UTC:20260528T170000
DTSTAMP:20260404T114725
CREATED:20260313T181848Z
LAST-MODIFIED:20260325T014648Z
UID:10000040-1779984000-1779987600@rareaction.org
SUMMARY:NORD Volunteer Meeting
DESCRIPTION:Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of every month at 4pm ET. \nRegister Here
URL:http://rareaction.org/event/nord-volunteer-meeting/2026-05-28/
LOCATION:Zoom Meeting\, Online
ATTACH;FMTTYPE=image/png:http://rareaction.org/wp-content/uploads/2026/03/Volunteer-Meeting-Social-Media-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260625T160000
DTEND;TZID=UTC:20260625T170000
DTSTAMP:20260404T114725
CREATED:20260313T181848Z
LAST-MODIFIED:20260325T014648Z
UID:10000041-1782403200-1782406800@rareaction.org
SUMMARY:NORD Volunteer Meeting
DESCRIPTION:Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of every month at 4pm ET. \nRegister Here
URL:http://rareaction.org/event/nord-volunteer-meeting/2026-06-25/
LOCATION:Zoom Meeting\, Online
ATTACH;FMTTYPE=image/png:http://rareaction.org/wp-content/uploads/2026/03/Volunteer-Meeting-Social-Media-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260723T160000
DTEND;TZID=UTC:20260723T170000
DTSTAMP:20260404T114725
CREATED:20260313T181848Z
LAST-MODIFIED:20260325T014648Z
UID:10000042-1784822400-1784826000@rareaction.org
SUMMARY:NORD Volunteer Meeting
DESCRIPTION:Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of every month at 4pm ET. \nRegister Here
URL:http://rareaction.org/event/nord-volunteer-meeting/2026-07-23/
LOCATION:Zoom Meeting\, Online
ATTACH;FMTTYPE=image/png:http://rareaction.org/wp-content/uploads/2026/03/Volunteer-Meeting-Social-Media-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260827T160000
DTEND;TZID=UTC:20260827T170000
DTSTAMP:20260404T114725
CREATED:20260313T181848Z
LAST-MODIFIED:20260325T014648Z
UID:10000043-1787846400-1787850000@rareaction.org
SUMMARY:NORD Volunteer Meeting
DESCRIPTION:Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of every month at 4pm ET. \nRegister Here
URL:http://rareaction.org/event/nord-volunteer-meeting/2026-08-27/
LOCATION:Zoom Meeting\, Online
ATTACH;FMTTYPE=image/png:http://rareaction.org/wp-content/uploads/2026/03/Volunteer-Meeting-Social-Media-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260924T160000
DTEND;TZID=UTC:20260924T170000
DTSTAMP:20260404T114725
CREATED:20260313T181848Z
LAST-MODIFIED:20260325T014648Z
UID:10000044-1790265600-1790269200@rareaction.org
SUMMARY:NORD Volunteer Meeting
DESCRIPTION:Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of every month at 4pm ET. \nRegister Here
URL:http://rareaction.org/event/nord-volunteer-meeting/2026-09-24/
LOCATION:Zoom Meeting\, Online
ATTACH;FMTTYPE=image/png:http://rareaction.org/wp-content/uploads/2026/03/Volunteer-Meeting-Social-Media-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20261022T160000
DTEND;TZID=UTC:20261022T170000
DTSTAMP:20260404T114725
CREATED:20260313T181848Z
LAST-MODIFIED:20260325T014648Z
UID:10000045-1792684800-1792688400@rareaction.org
SUMMARY:NORD Volunteer Meeting
DESCRIPTION:Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of every month at 4pm ET. \nRegister Here
URL:http://rareaction.org/event/nord-volunteer-meeting/2026-10-22/
LOCATION:Zoom Meeting\, Online
ATTACH;FMTTYPE=image/png:http://rareaction.org/wp-content/uploads/2026/03/Volunteer-Meeting-Social-Media-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20261126T160000
DTEND;TZID=UTC:20261126T170000
DTSTAMP:20260404T114725
CREATED:20260313T181848Z
LAST-MODIFIED:20260325T014648Z
UID:10000046-1795708800-1795712400@rareaction.org
SUMMARY:NORD Volunteer Meeting
DESCRIPTION:Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of every month at 4pm ET. \nRegister Here
URL:http://rareaction.org/event/nord-volunteer-meeting/2026-11-26/
LOCATION:Zoom Meeting\, Online
ATTACH;FMTTYPE=image/png:http://rareaction.org/wp-content/uploads/2026/03/Volunteer-Meeting-Social-Media-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20261224T160000
DTEND;TZID=UTC:20261224T170000
DTSTAMP:20260404T114725
CREATED:20260313T181848Z
LAST-MODIFIED:20260325T014648Z
UID:10000047-1798128000-1798131600@rareaction.org
SUMMARY:NORD Volunteer Meeting
DESCRIPTION:Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of every month at 4pm ET. \nRegister Here
URL:http://rareaction.org/event/nord-volunteer-meeting/2026-12-24/
LOCATION:Zoom Meeting\, Online
ATTACH;FMTTYPE=image/png:http://rareaction.org/wp-content/uploads/2026/03/Volunteer-Meeting-Social-Media-Graphic.png
END:VEVENT
END:VCALENDAR