As state legislative sessions wind down, join NORD’s Rare Action Network (RAN) for an end of session policy & advocacy wrap up. During this webinar, we’ll discuss bills we tracked across the country, celebrate our hard-fought advocacy wins, and identify key opportunities for growth and improvement. We’ll also discuss potential areas of focus as we […]
Advisory Council Meetings The Massachusetts RDAC meets virtually, and you can find additional meeting information linked below. Meetings
If you are impacted by a rare disease, you are likely spending countless hours navigating health insurance. In this session, we will discuss common insurance barriers faced by patients and caregivers living with a rare disease, and tips to overcome them. This panel incorporates several unique perspectives for every step in your journey that you […]
Advisory Council Meetings The Virginia Rare Disease Council meets quarterly. You can search for Virginia Rare Disease Council meetings on the Virginia Regulatory Town Hall website. To do so, simply select "State Board of Health" as the "Regulatory Board" and "All Past and Future" under "Scheduled For". Finally, enter "Rare Disease" in the "Meeting Title […]
Advisory Council Meetings The Nevada RDAC meets on the First Friday of the month on even numbered months at 9:30 AM PST. You can find the Nevada RDAC meeting times linked below. Please click on the Meeting Information for the current year to get further details. Meetings
You can find the Colorado RDAC meeting times linked below. Meetings
Are you a collegiate student interested in starting a NORD Students for Rare chapter on campus? Come and learn more about the program and next steps during our New Chapter Info Session! Our August session will take place on August 10 at 12:00 p.m. ET. We look forward to seeing you there! Register Here
Advisory Council Meetings The Indiana RDAC hosts virtual meetings, and additional meeting information can be found below. Meetings
For many rare disease patients, medical nutrition products are life-sustaining medicine, yet insurance coverage for medical nutrition is inconsistent and varies widely based on a patient's diagnosis, insurance plan type, […]
In an era of scientific and technological advances, rare disease care is changing every day. Join us for a robust panel discussion diving into different approaches to navigate and improve […]
In this session, NORD staff will provide an overview of NORD's volunteer programming. This is designed to give you a clear understanding of our mission and the various ways you […]
Rare Cancer Day is an annual celebration devoted to raising awareness about rare cancers and the challenges people living with them face. This year, Rare Cancer Day is being recognized […]
