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PRODID:-//- Rare Action Network® - ECPv6.15.17.1//NONSGML v1.0//EN
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X-WR-CALNAME:- Rare Action Network®
X-ORIGINAL-URL:http://rareaction.org
X-WR-CALDESC:Events for - Rare Action Network®
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DTSTART:20250101T000000
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DTSTART;TZID=UTC:20260617T130000
DTEND;TZID=UTC:20260617T140000
DTSTAMP:20260812T125425
CREATED:20260603T185837Z
LAST-MODIFIED:20260730T002238Z
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SUMMARY:Webinar: Effective Lawmaker Engagement for Rare Disease Advocates
DESCRIPTION:Building strong relationships with lawmakers is one of the most effective ways to advance rare disease policy and ensure the needs of our community are heard. The time between legislative sessions can be one of the most valuable opportunities to establish meaningful\, lasting relationships with elected officials and their staff. During this webinar\, we’ll teach you how to build and nourish relationships with your state lawmakers. We’ll also discuss strategies for engaging members of Congress ahead of the 2026 midterm elections when lawmakers are often spending more time in their home districts and seeking opportunities to connect with constituents. \nRegister Here
URL:http://rareaction.org/event/webinar-effective-lawmaker-engagement-for-rare-disease-advocates/
ATTACH;FMTTYPE=image/png:http://rareaction.org/wp-content/uploads/2026/06/6-17-26-RAN-Webinar-1.png
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DTSTART;TZID=UTC:20260605T100000
DTEND;TZID=UTC:20260605T110000
DTSTAMP:20260812T125425
CREATED:20251210T005511Z
LAST-MODIFIED:20260730T002317Z
UID:10000022-1780653600-1780657200@rareaction.org
SUMMARY:New Hampshire Rare Disease Advisory Council (RDAC) Meeting
DESCRIPTION:Advisory Council Meetings \nThe Council holds public meetings on the first Friday of each month from January through June\, from 10:00 a.m. to 11:00 a.m. \nMeetings typically take place at 29 Hazen Drive\, Concord\, New Hampshire; however\, the meeting location is subject to change. \nAn online attendance option is also available and may be accessed using the Microsoft Teams Meeting Link. \nFor information about attending a meeting\, including confirmation the location\, please contract Bureau of Family Health and Nutrition\, 603-271-4517 \nYou can find the published New Hampshire RDAC meeting times linked below. \nMeetings
URL:http://rareaction.org/event/new-hampshire-rare-disease-advisory-council-rdac-meeting-times/
LOCATION:New Hamp Place\, NH\, United States
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BEGIN:VEVENT
DTSTART;TZID=UTC:20260604T090000
DTEND;TZID=UTC:20260604T163000
DTSTAMP:20260812T125425
CREATED:20251210T002731Z
LAST-MODIFIED:20260730T002349Z
UID:10000018-1780563600-1780590600@rareaction.org
SUMMARY:Minnesota Rare Disease Advisory Council (RDAC) Meeting
DESCRIPTION:Advisory Council Meetings \nThe Minnesota RDAC meets virtually\, and you can find additional meeting information linked below. \nMeetings \nHow to Make a Public Comments during Full Council Meetings \nThe Minnesota Rare Disease Advisory Council values feedback from their community. They dedicate a public comment period during each quarterly full council meeting for members of the public who wish to address the council. If you would like to provide comment\, they ask that you contact them prior to the full council meeting date so that they can provide space. If you have a particular topic you would like to comment on please provide that information to them and your contact information at info@mnraredisease.org.\nIn order to ensure that they can accommodate everyone who may wish to speak\, speaking time is limited to 3 minutes per person.
URL:http://rareaction.org/event/minnesota-rare-disease-advisory-council-rdac-meeting-times/
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BEGIN:VEVENT
DTSTART;TZID=UTC:20260325T080000
DTEND;TZID=UTC:20260325T093000
DTSTAMP:20260812T125425
CREATED:20251210T011448Z
LAST-MODIFIED:20260730T002421Z
UID:10000024-1774425600-1774431000@rareaction.org
SUMMARY:Tennessee Rare Disease Advisory Council (RDAC) Meeting
DESCRIPTION:Advisory Council Meetings \nThe Tennessee RDAC meetings are scheduled on the fourth Wednesday of every other month from 8:00 am to 9:30 am CST. If you are interested in joining the meeting\, please email info@tnrdac.org for instructions on how to attend and a link to the virtual meeting. \nMeetings
URL:http://rareaction.org/event/tennessee-rare-disease-advisory-council-rdac-meeting-times/
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