Donate Now

Join RAN

Texas Rare Disease Day 2018

Loading Map....

Date/Time
April 19, 2018
11:00 am - 1:00 pm

Location
Law firm of Osha Liang LLP, Two Houston Center

Categories


Texas Rare Disease Day Advocacy Event

April 19, 2018 at 11:00am

Law firm of Osha Liang LLP, Two Houston Center, 909 Fannin Street, Suite 3500, Houston, Texas 77010

Join us for Texas Rare Action Network’s Rare Disease Day event. There will be a panel discussion on “How research incentives and healthcare coverage decisions impact patient health and access to new studies and drugs.” Speakers to be announced.

Lunch will be provided.

Please join patients, families, caregivers, medical professionals, Industry representatives and Texas legislators at this important event to discuss the challenges rare disease patients face.

  • By selecting yes you will be automatically signed up as a member of the Rare Action Network℠ and become a part of a 30+ million person community working towards improving the lives of patients with rare diseases. You will begin to receive regular communications from the Rare Action Network℠ team. To learn more visit: rareaction.org/get-involved/join-rare-action
  • This field is for validation purposes and should be left unchanged.

 

Program Sponsors

Alexion Logo

Corporate Partners stand behind taking rare action with NORD. Become a Corporate Partner Today!
View All Sponsors

NORD Links

NORD Logo

Rare Disease Day Logo

Running4Rare Logo